Application for Family Membership

Family Membership

.....is FREE to:

  • fragile X families living in the UK (who have a confirmed diagnosis of fragile X) (Overseas family memberhip incurs a fee of £30.00 per annum)
  • carriers of fragile X
  • people who are affected by fragile X
  • full time carers of one or more adults or children with fragile X

and entitles members to the following benefits:

  • Access to the Society's Newsletters which contain family stories, research updates, and articles about many different aspects of fragile X
  • Invitations to Family Conferences
  • Access to our Family Support Workers Jane and Wendy, and to our Link Family Members (who are all parents of children or adults with fragile X) for support, advice, and information
  • Access to the Members Forum, once an initial registration request has been granted. The forum gives registered family members the opportunity to communicate with other family members, to seek friendship and to share experiences, information, and knowledge 

Membership Forms

If you and/or an adult or child in your family (or wider family) has a confirmed diagnosis of fragile X, and wish to apply to become a family member of the Society then it is necessary to complete a Family Membership Application Form and a Diversity Monitoring From.  Please either Contact Us to obtain copies of the forms, or download them using the links below.

Once your details have been validated by us your details will be loaded onto our confidential membership database, and your membership details will be confirmed to you in writing.  

Download New UK Family Membership Form

Download Diversity Monitoring Form

These forms are PDF files and will download into a new window. To download them, right-click with your mouse and select "Save Target As..."

 

 

 

Family Membership

.....is FREE to:

  • fragile X families living in the UK (who have a confirmed diagnosis of fragile X) (Overseas family memberhip incurs a fee of £30.00 per annum)
  • carriers of fragile X
  • people who are affected by fragile X
  • full time carers of one or more adults or children with fragile X

and entitles members to the following benefits:

  • Access to the Society's Newsletters which contain family stories, research updates, and articles about many different aspects of fragile X
  • Invitations to Family Conferences
  • Access to our Family Support Workers Jane and Wendy, and to our Link Family Members (who are all parents of children or adults with fragile X) for support, advice, and information
  • Access to the Members Forum, once an initial registration request has been granted. The forum gives registered family members the opportunity to communicate with other family members, to seek friendship and to share experiences, information, and knowledge 

Membership Forms

If you and/or an adult or child in your family (or wider family) has a confirmed diagnosis of fragile X, and wish to apply to become a family member of the Society then it is necessary to complete a Family Membership Application Form and a Diversity Monitoring From.  Please either Contact Us to obtain copies of the forms, or download them using the links below.

Once your details have been validated by us your details will be loaded onto our confidential membership database, and your membership details will be confirmed to you in writing.  

Download New UK Family Membership Form

Download Diversity Monitoring Form

These forms are PDF files and will download into a new window. To download them, right-click with your mouse and select "Save Target As..."

 

 

 

  

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA
DISCLAIMER:
Great care has been taken in the compilation and preparation of this site to ensure that the information included is accurate. However The Fragile X Society cannot accept responsibility for any errors or omissions. The information is provided for education and information purposes and you should obtain further information from your medical practitioner. We do not knowingly reproduce inaccurate or libellous material. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.