Fragile X Syndrome is the most common known cause of inherited learning disabilities. It can cause a wide range of difficulties with learning, as well as social, language, attentional, emotional, and behavioral problems.
Our leaflet and booklets (see links below) give basic and then progressively more detailed information about fragile X. All have been written by or in consultation with the Society's medical, scientific and educational advisors, fragile X researchers and clinicians.
Our fourth booklet, 'Fragile X: Education and severe learning difficulties' is for those children and adults who are severly affected by fragile X. It should be read as a supplement to ‘Fragile X Syndrome: An Introduction to Educational Needs’ (above), as it focuses on the more severe effects on learning of fragile X.
Request / Order our papers by using our Publications List
Copies of all our booklets, as well as a full range of papers covering all aspects of fragile X can be obtained either by using our Publications List link above, (please note a new window will open to display the contents of this pdf file), or by using the Contact Us facility of this web site.
Individually tailored support, information and advice
We believe that the above publications give a very good introduction to fragile X; however, as fragile X is a complex condition and can be very wide-ranging in its effects, our Family Support Workers Jane and Wendy will be very pleased to give individual, tailored support, advice, and information that is specific to the particular requirements of both families and professionals. Please contact us either by phone on 01371 875100, or email us at info@fragilex.org.uk
Fragile X Information in other languages
For those seeking information about fragile X in other languages, the following 'Fragile X Genetics Patients Information' sheets prepared by London IDEAS Genetic Knowledge Park are available as pdf files. (New Window will open).
in Arabic
in English
in Farsi
in Gujarati
in Punjabi
in Turkish
in Urdu
Somali and Sylheti verstions available in audio format from www.londonideas.org./internet/index.html
More detailed information about fragile X
In addition to all of the above, we have a very wide range of papers that cover every aspect of fragile X. These are organised in our Publications List into various sections to ease searches for specific information. A subset of these papers are available for viewing below; or alternatively, the entire list can be viewed by downloading the Publications List / Order Form.(This will open a new window into which the pdf file will be loaded)
This list should be used to order one or more publications or papers - single copies of the Society's leaflet and booklets are available free. There is a small charge for the papers to cover our photocopying and postage costs.
The Society also has a booklet entitled “A Guide for families wishing to make legal (financial) provision for a disabled relative” by Anthony Quinn, Solicitor, former Chair of the Law Society Committee on Learning Disabilities and former Trustee of our Society. This Guide is available to our family members, to obtain a copy please Contact Us.
If you have any questions arising from the information about fragile X you read on our website please call us on 01371 875100 or email us at info@fragilex.org.uk or go to Contact Us.
What is fragile X?
A brief description of fragile X syndrome: how it is caused, its effects, diagnostic tests, and the support and information available from the Fragile X Society.
Download 'What is fragile X?' pdf file (new window will open)
Fragile X Syndrome - An Introduction
Explains:
- the genetics of fragile X and the importance of genetic counselling for families
- the learning, behaviour and relationship difficulties associated with fragile X and how these difficulties may be helped
- the different problems girls and women may experience and the physical features associated with the syndrome
Download 'Fragile X Syndrome - An Introduction' pdf file (new window will open)
Compiled from information provided by the Fragile X Society's specialist advisors, the Society gratefully acknowledges the help and advice it received from Dr Angela Barnicoat, Consultant Geneticist, Institute of Child Health, London and Dr Jeremy Turk, Senior Lecturer in Child & Adolescent Psychiatry, St George's Hospital Medical School, University of London
Fragile X Syndrome – An Introduction To Educational Needs
Explains the effects of fragile X on learning, with sections on:
- speech and language
- information overload
- curriculum strengths and weaknesses
- the behavioural aspects of fragile X
- school placements
- classroom environment
- number work and reading
- visual approaches to learning
- computers as effective learning tools
- work habits
- the specific difficulties experienced by girls
Download 'Fragile X Syndorme: An Introduction to Educational Needs' pdf file (new window will open)
The Fragile X Society gratefully acknowledges the help and advice it received from its specialist advisors: Charles Gibb who compiled the booklet and Dr Jeremy Turk for his support and comments
Fragile X Syndrome – Education And Severe Learning Difficulties
For those children and adults who are severly affected by fragile X, this booklet should be read as a supplement to ‘Fragile X Syndrome: An Introduction to Educational Needs’ (above), as it focuses on the more severe effects on learning of fragile X.It explains:
- how to make an educational assessment of a pupil/student with fragile X
- presents a framework for self-help, social and daily living skills through a developmental curriculum
A copy of this booklet can be obtained either by using our Publications List/Order Form, (please note a new window will open to display the contents of this pdf file), or by using the Contact Us facility of this web site.
The Fragile X Society gratefully acknowledges the help and advice it received from its specialist advisors: Charles Gibb who compiled the booklet and Dr Jeremy Turk for his support and comments.
Fragile X Syndrome is the most common known cause of inherited learning disabilities. It can cause a wide range of difficulties with learning, as well as social, language, attentional, emotional, and behavioral problems.
Our leaflet and booklets (see links below) give basic and then progressively more detailed information about fragile X. All have been written by or in consultation with the Society's medical, scientific and educational advisors, fragile X researchers and clinicians.
Our fourth booklet, 'Fragile X: Education and severe learning difficulties' is for those children and adults who are severly affected by fragile X. It should be read as a supplement to ‘Fragile X Syndrome: An Introduction to Educational Needs’ (above), as it focuses on the more severe effects on learning of fragile X.
Request / Order our papers by using our Publications List
Copies of all our booklets, as well as a full range of papers covering all aspects of fragile X can be obtained either by using our Publications List link above, (please note a new window will open to display the contents of this pdf file), or by using the Contact Us facility of this web site.
Individually tailored support, information and advice
We believe that the above publications give a very good introduction to fragile X; however, as fragile X is a complex condition and can be very wide-ranging in its effects, our Family Support Workers Jane and Wendy will be very pleased to give individual, tailored support, advice, and information that is specific to the particular requirements of both families and professionals. Please contact us either by phone on 01371 875100, or email us at info@fragilex.org.uk
Fragile X Information in other languages
For those seeking information about fragile X in other languages, the following 'Fragile X Genetics Patients Information' sheets prepared by London IDEAS Genetic Knowledge Park are available as pdf files. (New Window will open).
in Arabic
in English
in Farsi
in Gujarati
in Punjabi
in Turkish
in Urdu
Somali and Sylheti verstions available in audio format from www.londonideas.org./internet/index.html
More detailed information about fragile X
In addition to all of the above, we have a very wide range of papers that cover every aspect of fragile X. These are organised in our Publications List into various sections to ease searches for specific information. A subset of these papers are available for viewing below; or alternatively, the entire list can be viewed by downloading the Publications List / Order Form.(This will open a new window into which the pdf file will be loaded)
This list should be used to order one or more publications or papers - single copies of the Society's leaflet and booklets are available free. There is a small charge for the papers to cover our photocopying and postage costs.
The Society also has a booklet entitled “A Guide for families wishing to make legal (financial) provision for a disabled relative” by Anthony Quinn, Solicitor, former Chair of the Law Society Committee on Learning Disabilities and former Trustee of our Society. This Guide is available to our family members, to obtain a copy please Contact Us.
If you have any questions arising from the information about fragile X you read on our website please call us on 01371 875100 or email us at info@fragilex.org.uk or go to Contact Us.
What is fragile X?
A brief description of fragile X syndrome: how it is caused, its effects, diagnostic tests, and the support and information available from the Fragile X Society.
Download 'What is fragile X?' pdf file (new window will open)
Fragile X Syndrome - An Introduction
Explains:
- the genetics of fragile X and the importance of genetic counselling for families
- the learning, behaviour and relationship difficulties associated with fragile X and how these difficulties may be helped
- the different problems girls and women may experience and the physical features associated with the syndrome
Download 'Fragile X Syndrome - An Introduction' pdf file (new window will open)
Compiled from information provided by the Fragile X Society's specialist advisors, the Society gratefully acknowledges the help and advice it received from Dr Angela Barnicoat, Consultant Geneticist, Institute of Child Health, London and Dr Jeremy Turk, Senior Lecturer in Child & Adolescent Psychiatry, St George's Hospital Medical School, University of London
Fragile X Syndrome – An Introduction To Educational Needs
Explains the effects of fragile X on learning, with sections on:
- speech and language
- information overload
- curriculum strengths and weaknesses
- the behavioural aspects of fragile X
- school placements
- classroom environment
- number work and reading
- visual approaches to learning
- computers as effective learning tools
- work habits
- the specific difficulties experienced by girls
Download 'Fragile X Syndorme: An Introduction to Educational Needs' pdf file (new window will open)
The Fragile X Society gratefully acknowledges the help and advice it received from its specialist advisors: Charles Gibb who compiled the booklet and Dr Jeremy Turk for his support and comments
Fragile X Syndrome – Education And Severe Learning Difficulties
For those children and adults who are severly affected by fragile X, this booklet should be read as a supplement to ‘Fragile X Syndrome: An Introduction to Educational Needs’ (above), as it focuses on the more severe effects on learning of fragile X.It explains:
- how to make an educational assessment of a pupil/student with fragile X
- presents a framework for self-help, social and daily living skills through a developmental curriculum
A copy of this booklet can be obtained either by using our Publications List/Order Form, (please note a new window will open to display the contents of this pdf file), or by using the Contact Us facility of this web site.
The Fragile X Society gratefully acknowledges the help and advice it received from its specialist advisors: Charles Gibb who compiled the booklet and Dr Jeremy Turk for his support and comments.