Fragile X Society Conferences
Our family and professionals conferences provide the opportunity for families to learn about particular aspects of fragile X and the latest research findings, as well as giving them time to meet and share their experiences with each other and the professionals.
Conference Dates for 2010
The provisional dates, and information about our Family Conferences during 2010 are given here.
2009 Conference Reports
Conferences organised by the Society
- Saturday 7th November 2009 at the Balmoral Hotel, Dunmurry, South Belfast : Northern Ireland Family Conference. Once again we are delighted that Dr Mark Hurst (The Open University), Dr Gillian Rea (Belfast City Hospital), and Doctors Hooly Greer and Maggie McGurgan (Muckamore Abbey Hospital) spoke at this conference, and the delegates were pleased with the speakers and the other arrrangements for the day.
- Friday 18th September 2009 at The Holiday Inn, Birmingham : Conference for Professionals. Our Conference Feedback forms show that this was a higly successful day for the Society - both in terms of passing information about fragile X to professionals in the field, and for raising awareness about the condition. There was praise for the 'range of expertise presented', and the useful 'practical content' that will help when working with individuals with fragile X.
- Saturday 19th September 2009 : AGM and Family Conference, at the Holiday Inn, Birmingham, following the Professionals Conference the day before. This was very well attended and once again our family members and their guests could not be more pleased with the speakers and the venue.
Many of the delegates who attended the conferences on the 18th or 19th September have requested a copy of the speaker's notes : These are availabe for 3 of the speakers, as per the links below; the notes form the other speakers are expected to be available shortly.
Society conference details
- Lunch and refreshments are provided
- Creche facilities are available at the Family conferences
- All conference and creche places must be booked in advance
- Professionals and non-members are very welcome to attend the family conferences
- Conference Programmes are available nearer to the conference dates. If you wish to obtain the Conference papers (which include the registration forms) then please Contact Us to make the appropriate request.
For more details about specific conferences please visit the conferences page of this site.
Educational Conference with Marcia Braden
Organised by Interessengemeinschaft Fragiles-X e.V
We are flattered to have been asked by the German Fragile X Society to include details of their 'fragile X and School Education' conference to be held on September 26 2009 at the University of Giessen, Germany.
Dr Marcia Braden, the keynote speaker, is one of the few experts worldwide in the area of school education and support for children with fragile X, and more details about the programme for the day can be found in this flyer, or visit www.frax.de/fortbildung2009, or in the conferences page of this website.
Family Support Group Meetings
The next family support group meeting for parents and carers of children and adults with fragile X will be held in Chelmsford, Essex, in September 2009 at:
Chelmsford Voluntary Services, First Floor, 47 Broomfield Street, Chelmsford, Essex, CM1 1SY
Unfortunately the event can be attended by adults only, as the venue is not suitable for children. If you would like to, and are able to attend, we will be pleased to welcome you. Please Contact Us for more details.
Fragile X Fundraising Activities
Without the generosity of our families and supporters the Fragile X Society could not have developed into the organisation it is today. From the six founding members in 1990 our membership has grown to around 1600 families, all receiving support and information as they need it. A significant factor in maintaining that support is the need to generate ongoing income.
The Fragile X Society is the only organisation in the UK specifically offering support to fragile X families. Every penny raised for the Society will be used to continue that support and extend it to meet the changing needs of our families, to raise awareness and to support valid research.
Our current fundraising activities range from members organising sponsored events, to our friends and members holding Tea Parties, or joining our 100 Club, or selling tickets for our annual lottery.
Fragile X Society Conferences
Our family and professionals conferences provide the opportunity for families to learn about particular aspects of fragile X and the latest research findings, as well as giving them time to meet and share their experiences with each other and the professionals.
Conference Dates for 2010
The provisional dates, and information about our Family Conferences during 2010 are given here.
2009 Conference Reports
Conferences organised by the Society
- Saturday 7th November 2009 at the Balmoral Hotel, Dunmurry, South Belfast : Northern Ireland Family Conference. Once again we are delighted that Dr Mark Hurst (The Open University), Dr Gillian Rea (Belfast City Hospital), and Doctors Hooly Greer and Maggie McGurgan (Muckamore Abbey Hospital) spoke at this conference, and the delegates were pleased with the speakers and the other arrrangements for the day.
- Friday 18th September 2009 at The Holiday Inn, Birmingham : Conference for Professionals. Our Conference Feedback forms show that this was a higly successful day for the Society - both in terms of passing information about fragile X to professionals in the field, and for raising awareness about the condition. There was praise for the 'range of expertise presented', and the useful 'practical content' that will help when working with individuals with fragile X.
- Saturday 19th September 2009 : AGM and Family Conference, at the Holiday Inn, Birmingham, following the Professionals Conference the day before. This was very well attended and once again our family members and their guests could not be more pleased with the speakers and the venue.
Many of the delegates who attended the conferences on the 18th or 19th September have requested a copy of the speaker's notes : These are availabe for 3 of the speakers, as per the links below; the notes form the other speakers are expected to be available shortly.
Society conference details
- Lunch and refreshments are provided
- Creche facilities are available at the Family conferences
- All conference and creche places must be booked in advance
- Professionals and non-members are very welcome to attend the family conferences
- Conference Programmes are available nearer to the conference dates. If you wish to obtain the Conference papers (which include the registration forms) then please Contact Us to make the appropriate request.
For more details about specific conferences please visit the conferences page of this site.
Educational Conference with Marcia Braden
Organised by Interessengemeinschaft Fragiles-X e.V
We are flattered to have been asked by the German Fragile X Society to include details of their 'fragile X and School Education' conference to be held on September 26 2009 at the University of Giessen, Germany.
Dr Marcia Braden, the keynote speaker, is one of the few experts worldwide in the area of school education and support for children with fragile X, and more details about the programme for the day can be found in this flyer, or visit www.frax.de/fortbildung2009, or in the conferences page of this website.
Family Support Group Meetings
The next family support group meeting for parents and carers of children and adults with fragile X will be held in Chelmsford, Essex, in September 2009 at:
Chelmsford Voluntary Services, First Floor, 47 Broomfield Street, Chelmsford, Essex, CM1 1SY
Unfortunately the event can be attended by adults only, as the venue is not suitable for children. If you would like to, and are able to attend, we will be pleased to welcome you. Please Contact Us for more details.
Fragile X Fundraising Activities
Without the generosity of our families and supporters the Fragile X Society could not have developed into the organisation it is today. From the six founding members in 1990 our membership has grown to around 1600 families, all receiving support and information as they need it. A significant factor in maintaining that support is the need to generate ongoing income.
The Fragile X Society is the only organisation in the UK specifically offering support to fragile X families. Every penny raised for the Society will be used to continue that support and extend it to meet the changing needs of our families, to raise awareness and to support valid research.
Our current fundraising activities range from members organising sponsored events, to our friends and members holding Tea Parties, or joining our 100 Club, or selling tickets for our annual lottery.