Login    Normal Text Large Text Larger Text
 Fragile X Events

Fragile X Society Conferences

Our family and professionals conferences provide the opportunity for families to learn about particular aspects of fragile X and the latest research findings, as well as giving them time to meet and share their experiences with each other and the professionals.

Conferences held in Birmingham and Scotland are free to family members of the Society.

Conferences in London incur a fee (see below).

The Fragile X Society's Scottish Family Conference on Saturday 17th May 2014

at the Stirling Management Centre, University of Stirling, Scotland.

Once again we are pleased to announce that our family conference will be held in Scotland in May this year and we are look forward to hearing from our speakers Professor Peter Kind  of The Patrick Wild Centre in Edinburgh and Lorna Brown of Caritas Legal. 

They will cover a wide range of topics ranging from Fragile X research to the legal minefield surrounding the subject of guardianship, so we hope that you will want to come.

In addition we will get the full details of the amazing experiences of Clare Vickers, who did no less then climb Mt. Kilimanjaro to raise funds for us.

If you wish to attend the conference, the full programme and speaker details can be found in our newsletter issue number 73 - see pages 23 to 27.

To register for the conference please complete these forms and return them, with any fee, to us at the address given in the forms. We look forward to welcoming you to the conferece!

The Fragile X Society's London Family Conference on Sunday 2nd March 2014

at Hughes Parry Hall, University of London.

Once again our family conference held in London in March this year was a great success - the delegates were very pleased with the informative and entertaining way that our speakers Dr. Mark Hirst, Dr. Angela Barnicoat and Dean d'Souza presented thier lectures, covering a wide range of topics ranging from Fragile X research to genetics testing.

In addition we had our ever popular "Family Story", which always hits a note with our families, and the Society's Directors also introduced themseleves to the audience, giving brief details of their roles and how fragile X has impacted their lives.....

As ever we will be including a full report of each of the talks in a future publication of our family newsletter, so look out for these reports if you are interested but were not able to attend.

The Fragile X Society's Scottish Family Conference on

18th May 2013

Our 2013 Scottish Family Conference was held on Saturday 18th May at the usual venue, the Stirling management Centre at the University of Stirling in Scotland.

The programme was quite varied, with Dr Andrew Stanfield (The Patrick Wild Centre) giving details of current and future reseach developments; and Corrie McLean from fpa, the family planning association, talking about relationship and sex issues.

In the afternoon there were discussion/workshop sessions, as these are very popular with our families.

All in all, it was a very good conference for all..... if the very positive ffedback we received from the delegates is anything to go by. If you would like further details then a report on this conference can be found on pages 20 to 23 of our  family newsletter number 69 (June to July 2013) . 

Family Support Group Meetings

Regular family support group meetings for parents and carers of children and adults with fragile X are held in various venues in  England and Scotland. These are usually arranged by family members, and of these, the meetings most closely located to the fragile X office which is in Great Dunmow are held in Chelmsford, Essex.

Unfortunately the Chelmsford meeting can be attended by adults only, as the venue is not suitable for children. If you would like to, and are able to attend, we will be pleased to welcome you. For details of these and the other meetings at other locations please Contact Us to obtain more information.

Fragile X Fundraising Activities

Without the generosity of our families and supporters the Fragile X Society could not have developed into the organisation it is today. From the six founding members in 1990 our membership has grown to around 1500 families, all receiving support and information as they need it. A significant factor in maintaining that support is the need to generate ongoing income.

The Fragile X Society is the only organisation in the UK specifically offering support to fragile X families. Every penny raised for the Society will be used to continue that support and extend it to meet the changing needs of our families, to raise awareness and to support valid research.

Our current fundraising activities range from members organising sponsored events, to our friends and members holding Tea Parties,  or joining our 100 Club, or selling tickets for our annual lottery. 

Fragile X Society Conferences

Our family and professionals conferences provide the opportunity for families to learn about particular aspects of fragile X and the latest research findings, as well as giving them time to meet and share their experiences with each other and the professionals.

Conferences held in Birmingham and Scotland are free to family members of the Society.

Conferences in London incur a fee (see below).

The Fragile X Society's Scottish Family Conference on Saturday 17th May 2014

at the Stirling Management Centre, University of Stirling, Scotland.

Once again we are pleased to announce that our family conference will be held in Scotland in May this year and we are look forward to hearing from our speakers Professor Peter Kind  of The Patrick Wild Centre in Edinburgh and Lorna Brown of Caritas Legal. 

They will cover a wide range of topics ranging from Fragile X research to the legal minefield surrounding the subject of guardianship, so we hope that you will want to come.

In addition we will get the full details of the amazing experiences of Clare Vickers, who did no less then climb Mt. Kilimanjaro to raise funds for us.

If you wish to attend the conference, the full programme and speaker details can be found in our newsletter issue number 73 - see pages 23 to 27.

To register for the conference please complete these forms and return them, with any fee, to us at the address given in the forms. We look forward to welcoming you to the conferece!

The Fragile X Society's London Family Conference on Sunday 2nd March 2014

at Hughes Parry Hall, University of London.

Once again our family conference held in London in March this year was a great success - the delegates were very pleased with the informative and entertaining way that our speakers Dr. Mark Hirst, Dr. Angela Barnicoat and Dean d'Souza presented thier lectures, covering a wide range of topics ranging from Fragile X research to genetics testing.

In addition we had our ever popular "Family Story", which always hits a note with our families, and the Society's Directors also introduced themseleves to the audience, giving brief details of their roles and how fragile X has impacted their lives.....

As ever we will be including a full report of each of the talks in a future publication of our family newsletter, so look out for these reports if you are interested but were not able to attend.

The Fragile X Society's Scottish Family Conference on

18th May 2013

Our 2013 Scottish Family Conference was held on Saturday 18th May at the usual venue, the Stirling management Centre at the University of Stirling in Scotland.

The programme was quite varied, with Dr Andrew Stanfield (The Patrick Wild Centre) giving details of current and future reseach developments; and Corrie McLean from fpa, the family planning association, talking about relationship and sex issues.

In the afternoon there were discussion/workshop sessions, as these are very popular with our families.

All in all, it was a very good conference for all..... if the very positive ffedback we received from the delegates is anything to go by. If you would like further details then a report on this conference can be found on pages 20 to 23 of our  family newsletter number 69 (June to July 2013) . 

Family Support Group Meetings

Regular family support group meetings for parents and carers of children and adults with fragile X are held in various venues in  England and Scotland. These are usually arranged by family members, and of these, the meetings most closely located to the fragile X office which is in Great Dunmow are held in Chelmsford, Essex.

Unfortunately the Chelmsford meeting can be attended by adults only, as the venue is not suitable for children. If you would like to, and are able to attend, we will be pleased to welcome you. For details of these and the other meetings at other locations please Contact Us to obtain more information.

Fragile X Fundraising Activities

Without the generosity of our families and supporters the Fragile X Society could not have developed into the organisation it is today. From the six founding members in 1990 our membership has grown to around 1500 families, all receiving support and information as they need it. A significant factor in maintaining that support is the need to generate ongoing income.

The Fragile X Society is the only organisation in the UK specifically offering support to fragile X families. Every penny raised for the Society will be used to continue that support and extend it to meet the changing needs of our families, to raise awareness and to support valid research.

Our current fundraising activities range from members organising sponsored events, to our friends and members holding Tea Parties,  or joining our 100 Club, or selling tickets for our annual lottery. 

Fragile X Conference 2007

Fragile X Conference 2007

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA
DISCLAIMER:
Great care has been taken in the compilation and preparation of this site to ensure that the information included is accurate. However The Fragile X Society cannot accept responsibility for any errors or omissions. The information is provided for education and information purposes and you should obtain further information from your medical practitioner. We do not knowingly reproduce inaccurate or libellous material. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.

By using this site, you agree we can set and use cookies. For more details of these cookies and how to disable them, see our Cookie Policy.