2012 Conferences
For 2012 we have organised two conferences for our members as follows:
Scottish Family Conference - Saturday 12th May 2012 at the The Stirling Management Centre, Scotland.
We are delighted that the Society's Special Advisor Professor Jeremy Turk has agreed to be the principal speaker at this conference. He is very popular with our members and we have no doubt that the day will be a very successful one. The Programme, Speaker Biography, and Family / Creche/ Associate booking forms can be dowloaded here.
Birmingham Family Conference and AGM - Saturday 29th September 2012 at The Holiday Inn in Birmingham, UK.
We are very excited that "Tracy and Mouse" from Denver, Colorado, have accepted our invitation to speak at our September Family Conference. They are the co-founders of Developmental FX, a not-for-profit organization specializing in clinical services for families with Fragile X Syndrome and other neurodevelopmental disorders.
Tracy Murnan Stackhouse, MA, OTR, is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X Syndrome and autism. She has written several book chapters on sensory integration and neurodevelopmental disorders, and teaches nationally and internationally on sensory integration, fragile X and related topics.
Sarah Scharfenaker, MA, CCC-SLP, fondly known as “Mouse”, has worked in the fields of Fragile X Syndrome and neurodevelopmental disorders for more than15 years. Mouse has published many chapters and articles on intervention for Fragile X. Her special connection with children and adults as well as her extensive expertise allow her to bring a depth to her work that is unmatched and well remembered by those who have seen her.
The full programme and registration details for this conference shall be available towards the end of June 2012.
The Fragile X Society - 2011 AGM and Family Conference
Saturday 17 September 2011 at The Holiday Inn, Birmingham, England
The conference was a phenomenal success, with huge numbers attending, and the feedback from the delegates was very positive. The Programme included speakers who are experts in thier area of fragile X:
- Professor Jeremy Turk, Professor of Developmental Psychiatry at St George's, University of London; and a long time Specialist Advisor to the Society.
- Dr Sebastien Jaquement, who also spoke at our Scottish Conference in May this year, and who is a clinical geneticist with a strong interest in fragile X and in fragile X-associated tremor ataxia syndrome (FXTAS).
- Professor Chris Oliver who is a Professor of Neurodevelopmental Disorders at the University of Birmingham. Professor Oliver's talks at our previous conferences have always been well received by the delegates so we look forward to welcoming him again.
The full programme can be downloaded here.
A full report of the conference was given in our newsletter issue November-December 2011.
RESULTS OF THE FEEDBACK QUESTIONNAIRE from our last National Family Conference and AGM on Saturday 19th June 2010
Did you find Dr. Marcia Braden’s talk on “Exceptional strategies for success with Fragile X Syndrome.” interesting?
54 said ‘yes’, of these other comments were:
- 13 said ‘very good’
- 2 said ‘excellent’
- 2 said ‘fantastic’
- 2 said ‘fascinating’
- ‘very interesting both as a mum to a boy of 5 with FX and as a headteacher of a primary school’
- ‘lots of really useful information’
- ‘good ideas to aid learning’
- ‘excellent ideas to use in practice’
- ‘wished we had the talk when our son was young’
- ‘a good introduction for me as a teaching assistant…’
- ‘I’ve learnt a lot, which will help me with my client – I’m a key support worker’
- ‘having hand-outs in advance was a wonderful idea – it allows you to concentrate & jot down notes in an appropriate place as you go’
Did you find Dr. Marcia Braden’s talk on “The adolescent and adult issues, with case studies.’ Interesting?
54 said ‘yes’, of these ‘yes’ votes, some of the added comments were:
- ‘fantastic’
- ‘exceptionally interesting’
- ‘really stimulating & relevant’
- ‘very helpful’
- ‘very inspiring’
- ‘very positive on what achievements are possible’
- ‘very interesting & not all negative’
- ‘re-assuring’
- ‘useful to help prepare us for our son’s transition to adulthood’
- ‘excellent; just what we needed to help with our 15yr old’
- ‘this information was invaluable as what we may expect in years to come’
- ‘definitely – I loved her videos – they were relevant and illustrated her points...’
Did you find Dr. Marcia Braden’s talk on “Behavioural characteristics and intervention strategies” interesting?
52 said ‘yes’,2 made no comment, and of the ‘yes’ votes, some of the added comments were:
- ‘excellent’
- ‘brilliant’
- ‘full of insights and useful strategies’
- ‘she talks a lot of sense’
- ‘I will put a lot of these strategies into play’
- ‘our lives have now become less stressful already!’
- ‘gave us a lot of basic info as parents of a newly diagnosed’
- ‘provided good ideas to use on a daily basis’
- ‘can’t praise her enough’
- ‘this one was the talk I was looking forward to’
- ‘this was what we came for and has been very enlightening with lots of ideas’
2012 Conferences
For 2012 we have organised two conferences for our members as follows:
Scottish Family Conference - Saturday 12th May 2012 at the The Stirling Management Centre, Scotland.
We are delighted that the Society's Special Advisor Professor Jeremy Turk has agreed to be the principal speaker at this conference. He is very popular with our members and we have no doubt that the day will be a very successful one. The Programme, Speaker Biography, and Family / Creche/ Associate booking forms can be dowloaded here.
Birmingham Family Conference and AGM - Saturday 29th September 2012 at The Holiday Inn in Birmingham, UK.
We are very excited that "Tracy and Mouse" from Denver, Colorado, have accepted our invitation to speak at our September Family Conference. They are the co-founders of Developmental FX, a not-for-profit organization specializing in clinical services for families with Fragile X Syndrome and other neurodevelopmental disorders.
Tracy Murnan Stackhouse, MA, OTR, is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X Syndrome and autism. She has written several book chapters on sensory integration and neurodevelopmental disorders, and teaches nationally and internationally on sensory integration, fragile X and related topics.
Sarah Scharfenaker, MA, CCC-SLP, fondly known as “Mouse”, has worked in the fields of Fragile X Syndrome and neurodevelopmental disorders for more than15 years. Mouse has published many chapters and articles on intervention for Fragile X. Her special connection with children and adults as well as her extensive expertise allow her to bring a depth to her work that is unmatched and well remembered by those who have seen her.
The full programme and registration details for this conference shall be available towards the end of June 2012.
The Fragile X Society - 2011 AGM and Family Conference
Saturday 17 September 2011 at The Holiday Inn, Birmingham, England
The conference was a phenomenal success, with huge numbers attending, and the feedback from the delegates was very positive. The Programme included speakers who are experts in thier area of fragile X:
- Professor Jeremy Turk, Professor of Developmental Psychiatry at St George's, University of London; and a long time Specialist Advisor to the Society.
- Dr Sebastien Jaquement, who also spoke at our Scottish Conference in May this year, and who is a clinical geneticist with a strong interest in fragile X and in fragile X-associated tremor ataxia syndrome (FXTAS).
- Professor Chris Oliver who is a Professor of Neurodevelopmental Disorders at the University of Birmingham. Professor Oliver's talks at our previous conferences have always been well received by the delegates so we look forward to welcoming him again.
The full programme can be downloaded here.
A full report of the conference was given in our newsletter issue November-December 2011.
RESULTS OF THE FEEDBACK QUESTIONNAIRE from our last National Family Conference and AGM on Saturday 19th June 2010
Did you find Dr. Marcia Braden’s talk on “Exceptional strategies for success with Fragile X Syndrome.” interesting?
54 said ‘yes’, of these other comments were:
- 13 said ‘very good’
- 2 said ‘excellent’
- 2 said ‘fantastic’
- 2 said ‘fascinating’
- ‘very interesting both as a mum to a boy of 5 with FX and as a headteacher of a primary school’
- ‘lots of really useful information’
- ‘good ideas to aid learning’
- ‘excellent ideas to use in practice’
- ‘wished we had the talk when our son was young’
- ‘a good introduction for me as a teaching assistant…’
- ‘I’ve learnt a lot, which will help me with my client – I’m a key support worker’
- ‘having hand-outs in advance was a wonderful idea – it allows you to concentrate & jot down notes in an appropriate place as you go’
Did you find Dr. Marcia Braden’s talk on “The adolescent and adult issues, with case studies.’ Interesting?
54 said ‘yes’, of these ‘yes’ votes, some of the added comments were:
- ‘fantastic’
- ‘exceptionally interesting’
- ‘really stimulating & relevant’
- ‘very helpful’
- ‘very inspiring’
- ‘very positive on what achievements are possible’
- ‘very interesting & not all negative’
- ‘re-assuring’
- ‘useful to help prepare us for our son’s transition to adulthood’
- ‘excellent; just what we needed to help with our 15yr old’
- ‘this information was invaluable as what we may expect in years to come’
- ‘definitely – I loved her videos – they were relevant and illustrated her points...’
Did you find Dr. Marcia Braden’s talk on “Behavioural characteristics and intervention strategies” interesting?
52 said ‘yes’,2 made no comment, and of the ‘yes’ votes, some of the added comments were:
- ‘excellent’
- ‘brilliant’
- ‘full of insights and useful strategies’
- ‘she talks a lot of sense’
- ‘I will put a lot of these strategies into play’
- ‘our lives have now become less stressful already!’
- ‘gave us a lot of basic info as parents of a newly diagnosed’
- ‘provided good ideas to use on a daily basis’
- ‘can’t praise her enough’
- ‘this one was the talk I was looking forward to’
- ‘this was what we came for and has been very enlightening with lots of ideas’