The Society is delighted to report that both of our 2010 Fragile X Family Conferences were hugely successful.
The Fragile X Society - Scottish Family Conference
Saturday 8th May 2010 at the Stirling Management Centre, Stirling, Scotland
The Conference Programme can be viewed here.
The feedback from this conference was very positive and we are pleased that our families and professional guests found that it was well worth thier while to attend. We should like to thank the speakers who all gave their time freely to share their knowledge and expertise with our families.
The Fragile X Society - AGM and Family Conference
Saturday 19 June 2010 at The Holiday Inn, Birmingham, England
The various learning differences and behavioural tendencies of children and adults with Fragile X Syndrome often place thier families, teachers and other professional personnel into challenging situations.
In order to assist and inform everyone who interacts with individuals who have fragile X, we were delighted to have as our speaker for the whole day, Dr. Marcia Braden (Colorado Springs, USA); who is one of the few experts worldwide in the area of school education and support for children with Fragile X.
As in previous years, our creche facilities for children up to the age of 10 were gratefully taken up by our parents so that they could get the most from Dr Braden's presentations.
The Conference Programme can be viewd here. A full report of the conference can be obtained by calling us on 01371 875100 or Contacting Us and requesting this information.
RESULTS OF THE FEEDBACK QUESTIONNAIRE:
National Family Conference: Saturday 19th June 2010
Did you find Dr. Marcia Braden’s talk on “Exceptional strategies for success with Fragile X Syndrome.” interesting?
54 said ‘yes’, of these other comments were:
- 13 said ‘very good’
- 2 said ‘excellent’
- 2 said ‘fantastic’
- 2 said ‘fascinating’
- ‘very interesting both as a mum to a boy of 5 with FX and as a headteacher of a primary school’
- ‘lots of really useful information’
- ‘good ideas to aid learning’
- ‘excellent ideas to use in practice’
- ‘wished we had the talk when our son was young’
- ‘a good introduction for me as a teaching assistant…’
- ‘I’ve learnt a lot, which will help me with my client – I’m a key support worker’
- ‘having hand-outs in advance was a wonderful idea – it allows you to concentrate & jot down notes in an appropriate place as you go’
Did you find Dr. Marcia Braden’s talk on “The adolescent and adult issues, with case studies.’ Interesting?
54 said ‘yes’, of these ‘yes’ votes, some of the added comments were:
- ‘fantastic’
- ‘exceptionally interesting’
- ‘really stimulating & relevant’
- ‘very helpful’
- ‘very inspiring’
- ‘very positive on what achievements are possible’
- ‘very interesting & not all negative’
- ‘re-assuring’
- ‘useful to help prepare us for our son’s transition to adulthood’
- ‘excellent; just what we needed to help with our 15yr old’
- ‘this information was invaluable as what we may expect in years to come’
- ‘definitely – I loved her videos – they were relevant and illustrated her points...’
Did you find Dr. Marcia Braden’s talk on “Behavioural characteristics and intervention strategies” interesting?
52 said ‘yes’,2 made no comment, and of the ‘yes’ votes, some of the added comments were:
- ‘excellent’
- ‘brilliant’
- ‘full of insights and useful strategies’
- ‘she talks a lot of sense’
- ‘I will put a lot of these strategies into play’
- ‘our lives have now become less stressful already!’
- ‘gave us a lot of basic info as parents of a newly diagnosed’
- ‘provided good ideas to use on a daily basis’
- ‘can’t praise her enough’
- ‘this one was the talk I was looking forward to’
- ‘this was what we came for and has been very enlightening with lots of ideas’
The Society is delighted to report that both of our 2010 Fragile X Family Conferences were hugely successful.
The Fragile X Society - Scottish Family Conference
Saturday 8th May 2010 at the Stirling Management Centre, Stirling, Scotland
The Conference Programme can be viewed here.
The feedback from this conference was very positive and we are pleased that our families and professional guests found that it was well worth thier while to attend. We should like to thank the speakers who all gave their time freely to share their knowledge and expertise with our families.
The Fragile X Society - AGM and Family Conference
Saturday 19 June 2010 at The Holiday Inn, Birmingham, England
The various learning differences and behavioural tendencies of children and adults with Fragile X Syndrome often place thier families, teachers and other professional personnel into challenging situations.
In order to assist and inform everyone who interacts with individuals who have fragile X, we were delighted to have as our speaker for the whole day, Dr. Marcia Braden (Colorado Springs, USA); who is one of the few experts worldwide in the area of school education and support for children with Fragile X.
As in previous years, our creche facilities for children up to the age of 10 were gratefully taken up by our parents so that they could get the most from Dr Braden's presentations.
The Conference Programme can be viewd here. A full report of the conference can be obtained by calling us on 01371 875100 or Contacting Us and requesting this information.
RESULTS OF THE FEEDBACK QUESTIONNAIRE:
National Family Conference: Saturday 19th June 2010
Did you find Dr. Marcia Braden’s talk on “Exceptional strategies for success with Fragile X Syndrome.” interesting?
54 said ‘yes’, of these other comments were:
- 13 said ‘very good’
- 2 said ‘excellent’
- 2 said ‘fantastic’
- 2 said ‘fascinating’
- ‘very interesting both as a mum to a boy of 5 with FX and as a headteacher of a primary school’
- ‘lots of really useful information’
- ‘good ideas to aid learning’
- ‘excellent ideas to use in practice’
- ‘wished we had the talk when our son was young’
- ‘a good introduction for me as a teaching assistant…’
- ‘I’ve learnt a lot, which will help me with my client – I’m a key support worker’
- ‘having hand-outs in advance was a wonderful idea – it allows you to concentrate & jot down notes in an appropriate place as you go’
Did you find Dr. Marcia Braden’s talk on “The adolescent and adult issues, with case studies.’ Interesting?
54 said ‘yes’, of these ‘yes’ votes, some of the added comments were:
- ‘fantastic’
- ‘exceptionally interesting’
- ‘really stimulating & relevant’
- ‘very helpful’
- ‘very inspiring’
- ‘very positive on what achievements are possible’
- ‘very interesting & not all negative’
- ‘re-assuring’
- ‘useful to help prepare us for our son’s transition to adulthood’
- ‘excellent; just what we needed to help with our 15yr old’
- ‘this information was invaluable as what we may expect in years to come’
- ‘definitely – I loved her videos – they were relevant and illustrated her points...’
Did you find Dr. Marcia Braden’s talk on “Behavioural characteristics and intervention strategies” interesting?
52 said ‘yes’,2 made no comment, and of the ‘yes’ votes, some of the added comments were:
- ‘excellent’
- ‘brilliant’
- ‘full of insights and useful strategies’
- ‘she talks a lot of sense’
- ‘I will put a lot of these strategies into play’
- ‘our lives have now become less stressful already!’
- ‘gave us a lot of basic info as parents of a newly diagnosed’
- ‘provided good ideas to use on a daily basis’
- ‘can’t praise her enough’
- ‘this one was the talk I was looking forward to’
- ‘this was what we came for and has been very enlightening with lots of ideas’