Fragile X family groups and associations around the world.
Please note that this is not an exhaustive list. If you would like to include the details for your group or association in our list then please Contact Us.
The content on this page (website addresses, email addresses etc) were last checked in December 2008
ARGENTINA
Asociacion SindromeX Fragil de Argentina
Email: x_fragil@yahoo.com.ar
AUSTRALIA
Fragile X Association
Postal Address :
P O Box 109
MANLY NSW 1655
Street Address :
Suite 2/4 Belgrave Street
MANLY NSW 2095
Office : 02 9977 0074 (Tues/Wed/Thurs)
Support : 0409 987 012
Fax : 02 9976 2396
Email : support@fragilex.org.au
Website : www.fragilex.org.au
Fragile X Alliance Inc.
Tel : 00 61 (0)613 9528 1910
Email : jcohen@travelclinic.com.au
Website : www.fragilex.com.au
BELGIUM
Werkgroep Fragiel – werkgroep rond outders van kinderen met het Fragiele X-syndroom
Flemish Association supporting parents of children with fragile X syndrome
Email : mbaetens@belgacom.net
Website : www.fragiel.be
Association Syndrome X-fragile – Section de l’Association Francophone d’Aide aux Handicapes Mentaux
French speaking Fragile X syndrome Association
Tel: 00 32 (0)87 54 25 02
Email: ass.x.fragile@skynet.be
Website: www.x-fragile.be
BRASIL
Fundacao Brasileira da Sindrome do X-Fragil
Tel: 00 55 (0)51-3330-5617
Email: xfragil@zaz.com.br
Website: www.xfragil.com.br
Associacao X Fragil do Brasil
Tel: 00 55 (0)11 3501.1621
Email: xfragil@xfragil.org.br
Website: www.xfragil.org.br
BULGARIA
Bulgaria: Assocaition of Parents of Children with Cerebral Palsy
(also includes support for fragile X families)
Tel: 00 359 52821819, GSM: 00359 88580573
Email: apchcp@triada.bg
Website: www.happykids.hit.bg/right.htm
CANADA
Fragile X Research Foundation of Canada
Tel: 00 1 (0)905 453-9366
Email: info@fragilexcanada.ca
Website: www.fragilexcanada.ca
ESTONIA
Institute of Molecular and Cell Biology
Department of Pediatrics
University of Tartu
Helen Puusepp, MD
Tel: 00 372 (0)7375034
EUROPEAN ASSOCIATION
Association xfragile-Europe
Email: info@x-fragile.eu
Website: x-fragile.eu
FRANCE
Association des “X Fragile”
Email: mosaiques@xfragile.org
Website: www.xfragile.org
ANXFRA "Le Goeland"
Association Nationale du Syndrome X fragile
Presidente Corrine Fourrier - Email: presidentexfragoel@gmail.com
Website: www.xfra.org
GERMANY
Interessengemeinschaft Fragiles-X e.V.
Tel: 00 49 (0)4192 4053
Email: info@frax.de
Website: www.frax.de
GUATEMALA
Asociacion Guatemalteca del Sindrome X-Fragil (en formacion)
K.m. 16.5 carretera a El Salvador, L5, MzB Sector III.
Terravista. Fraijanes, Guatemala
Tel: 00 502 (0)5219 8949
INDIA
Fragile X Society – India
Shalini Kedia (parent contact)
Tel: 00 91 (0)22 66642151
Cell: 00 91 (0)9820199092
Email: fragilexindia@yahoo.com
Website: www.fragilex.org/html/india.htm
IRELAND
Irish Fragile X Society
Email: info@fragilex-ireland.org
Website: www.fragilex-ireland.org
ISRAEL
Fragile X Society – Israel
Rachel and Ofer David (parent contacts)
Email: David_o@netvision.net.il
ITALY
Associazione Italiana Sindrome X-Fragile Onlus
Tel: 00 39 (0)2 47717104
Email: info@xfragile.net
Website: www.xfragile.net
NETHERLANDS
Fragiele X Vereniging Nederland
Dutch Association of Parents of Children with Fragile X
Tel: 00 31 (0)30 2363783 / 00 31 (0)30 2363729
Email: info@fragielex.nl
Website: www.fragielex.nl
NEW ZEALAND
Fragile X Trust – NZ
Tel: 00 64 (0)4-938-0552 (International)
Tel: 00 64 (0)508 938-0552 (toll free within NZ)
Email: fragilex.info@nzord.org.nz
Website: www.fragilex.org.nz
NIGERIA AND WEST AFRICA
Pastor Mr and Mrs Osakpolor Alyanyor (parent contacts)
Email: osakpolosa@yahoo.com
NORWAY
Foreningen for Fragilt X-syndrom
Email: ragnar.tonnessen@no.abb.com
Website: www.frax.no
PORTUGAL
Associacao Portuguesa da Sindrome do X Fragil (APSXF) – Portugal
Address : Rua do Guadiana, no. 34 2775 319 PAREDE
Tel: 96 6440136
Tel: 96 7271404
Tel: 91 2353089
E-mail: geral@apsxf.org2
Email: www.apsxf.org
ROMANIA
Parent contact
Email: nuxandra_popa2003@yahoo.com
SAUDI ARABIA
Osama Al Swailem, MD
Tel: 00 966 (0)1 442 4680
Fax: 00 966 (0)1 442 7811
Email: alswailem@kfshrc.edu.sa
SPAIN
Federacion Espanola de Asociaciones del sindrome X-Fragil
Spanish Federation of Fragile X Syndrome
Email: xfragil@nova.es
Website: www.nova.es/xfragil
SWEDEN
Fraxa Sweden
Email: info@fragilex.se
Website: www.fragilex.se
SWITZERLAND
Association X Fragile Suisse
Email: associationxfragile@romandie.com
Website: www.x-fragile.ch
Geneva’s Association X-Fragile Syndrom
(Association du Syndrome X Fragile “Le Cristal”)
Email: mudaz@bluewin.ch
Website: www.homepage.swissonline.ch/lecristal
TAIWAN
Taiwan Fragile X Association
Tel: 00 886 (0)2-27680802
Email: tcdac@gsn.gov.tw
TURKEY
Turkish Fragile X Syndrome Research Association (FraxDer)
Tel: 00 90 (0)216-4860026
Email: rose@TURK.NET
UNITED ARAB EMIRATES
Khaled Amiri, PhD
Tel: 00 971 (0)3 7614064
Fax: 00 971 (0)3 7614045
Mobile: 00 971 (0)5 6248523
Email: k.amiri@uaeu.ac.ae
UNITED KINGDOM
The Fragile X Society
Tel: 00 44 (0) 1371 875100
Fax: 00 44 (0) 1371 859915
Email: info@fragilex.org.uk
Website: www.fragilex.org.uk
UNITED STATES OF AMERICA
FRAXA Research Foundation
Tel: 00 1 (0)978 462-1866
Fax: 00 1 (0)978 463-9985
Email: info@fraxa.org
Website: www.fraxa.org
National Fragile X Foundation
Tel: 00 1 (0)925-938-9300
Fax: 00 1 (0)925-938-9315
Email: NATLFX@FragileX.org
Website: www.fragileX.org
URUGUAY
Asociacion X Fragil del Uruguay
Tel: 00 598 (0)2 707 3305
Email: xfragil@xfragil.org.uy
Website: www.xfragil.org.uy
Fragile X family groups and associations around the world.
Please note that this is not an exhaustive list. If you would like to include the details for your group or association in our list then please Contact Us.
The content on this page (website addresses, email addresses etc) were last checked in December 2008
ARGENTINA
Asociacion SindromeX Fragil de Argentina
Email: x_fragil@yahoo.com.ar
AUSTRALIA
Fragile X Association
Postal Address :
P O Box 109
MANLY NSW 1655
Street Address :
Suite 2/4 Belgrave Street
MANLY NSW 2095
Office : 02 9977 0074 (Tues/Wed/Thurs)
Support : 0409 987 012
Fax : 02 9976 2396
Email : support@fragilex.org.au
Website : www.fragilex.org.au
Fragile X Alliance Inc.
Tel : 00 61 (0)613 9528 1910
Email : jcohen@travelclinic.com.au
Website : www.fragilex.com.au
BELGIUM
Werkgroep Fragiel – werkgroep rond outders van kinderen met het Fragiele X-syndroom
Flemish Association supporting parents of children with fragile X syndrome
Email : mbaetens@belgacom.net
Website : www.fragiel.be
Association Syndrome X-fragile – Section de l’Association Francophone d’Aide aux Handicapes Mentaux
French speaking Fragile X syndrome Association
Tel: 00 32 (0)87 54 25 02
Email: ass.x.fragile@skynet.be
Website: www.x-fragile.be
BRASIL
Fundacao Brasileira da Sindrome do X-Fragil
Tel: 00 55 (0)51-3330-5617
Email: xfragil@zaz.com.br
Website: www.xfragil.com.br
Associacao X Fragil do Brasil
Tel: 00 55 (0)11 3501.1621
Email: xfragil@xfragil.org.br
Website: www.xfragil.org.br
BULGARIA
Bulgaria: Assocaition of Parents of Children with Cerebral Palsy
(also includes support for fragile X families)
Tel: 00 359 52821819, GSM: 00359 88580573
Email: apchcp@triada.bg
Website: www.happykids.hit.bg/right.htm
CANADA
Fragile X Research Foundation of Canada
Tel: 00 1 (0)905 453-9366
Email: info@fragilexcanada.ca
Website: www.fragilexcanada.ca
ESTONIA
Institute of Molecular and Cell Biology
Department of Pediatrics
University of Tartu
Helen Puusepp, MD
Tel: 00 372 (0)7375034
EUROPEAN ASSOCIATION
Association xfragile-Europe
Email: info@x-fragile.eu
Website: x-fragile.eu
FRANCE
Association des “X Fragile”
Email: mosaiques@xfragile.org
Website: www.xfragile.org
ANXFRA "Le Goeland"
Association Nationale du Syndrome X fragile
Presidente Corrine Fourrier - Email: presidentexfragoel@gmail.com
Website: www.xfra.org
GERMANY
Interessengemeinschaft Fragiles-X e.V.
Tel: 00 49 (0)4192 4053
Email: info@frax.de
Website: www.frax.de
GUATEMALA
Asociacion Guatemalteca del Sindrome X-Fragil (en formacion)
K.m. 16.5 carretera a El Salvador, L5, MzB Sector III.
Terravista. Fraijanes, Guatemala
Tel: 00 502 (0)5219 8949
INDIA
Fragile X Society – India
Shalini Kedia (parent contact)
Tel: 00 91 (0)22 66642151
Cell: 00 91 (0)9820199092
Email: fragilexindia@yahoo.com
Website: www.fragilex.org/html/india.htm
IRELAND
Irish Fragile X Society
Email: info@fragilex-ireland.org
Website: www.fragilex-ireland.org
ISRAEL
Fragile X Society – Israel
Rachel and Ofer David (parent contacts)
Email: David_o@netvision.net.il
ITALY
Associazione Italiana Sindrome X-Fragile Onlus
Tel: 00 39 (0)2 47717104
Email: info@xfragile.net
Website: www.xfragile.net
NETHERLANDS
Fragiele X Vereniging Nederland
Dutch Association of Parents of Children with Fragile X
Tel: 00 31 (0)30 2363783 / 00 31 (0)30 2363729
Email: info@fragielex.nl
Website: www.fragielex.nl
NEW ZEALAND
Fragile X Trust – NZ
Tel: 00 64 (0)4-938-0552 (International)
Tel: 00 64 (0)508 938-0552 (toll free within NZ)
Email: fragilex.info@nzord.org.nz
Website: www.fragilex.org.nz
NIGERIA AND WEST AFRICA
Pastor Mr and Mrs Osakpolor Alyanyor (parent contacts)
Email: osakpolosa@yahoo.com
NORWAY
Foreningen for Fragilt X-syndrom
Email: ragnar.tonnessen@no.abb.com
Website: www.frax.no
PORTUGAL
Associacao Portuguesa da Sindrome do X Fragil (APSXF) – Portugal
Address : Rua do Guadiana, no. 34 2775 319 PAREDE
Tel: 96 6440136
Tel: 96 7271404
Tel: 91 2353089
E-mail: geral@apsxf.org2
Email: www.apsxf.org
ROMANIA
Parent contact
Email: nuxandra_popa2003@yahoo.com
SAUDI ARABIA
Osama Al Swailem, MD
Tel: 00 966 (0)1 442 4680
Fax: 00 966 (0)1 442 7811
Email: alswailem@kfshrc.edu.sa
SPAIN
Federacion Espanola de Asociaciones del sindrome X-Fragil
Spanish Federation of Fragile X Syndrome
Email: xfragil@nova.es
Website: www.nova.es/xfragil
SWEDEN
Fraxa Sweden
Email: info@fragilex.se
Website: www.fragilex.se
SWITZERLAND
Association X Fragile Suisse
Email: associationxfragile@romandie.com
Website: www.x-fragile.ch
Geneva’s Association X-Fragile Syndrom
(Association du Syndrome X Fragile “Le Cristal”)
Email: mudaz@bluewin.ch
Website: www.homepage.swissonline.ch/lecristal
TAIWAN
Taiwan Fragile X Association
Tel: 00 886 (0)2-27680802
Email: tcdac@gsn.gov.tw
TURKEY
Turkish Fragile X Syndrome Research Association (FraxDer)
Tel: 00 90 (0)216-4860026
Email: rose@TURK.NET
UNITED ARAB EMIRATES
Khaled Amiri, PhD
Tel: 00 971 (0)3 7614064
Fax: 00 971 (0)3 7614045
Mobile: 00 971 (0)5 6248523
Email: k.amiri@uaeu.ac.ae
UNITED KINGDOM
The Fragile X Society
Tel: 00 44 (0) 1371 875100
Fax: 00 44 (0) 1371 859915
Email: info@fragilex.org.uk
Website: www.fragilex.org.uk
UNITED STATES OF AMERICA
FRAXA Research Foundation
Tel: 00 1 (0)978 462-1866
Fax: 00 1 (0)978 463-9985
Email: info@fraxa.org
Website: www.fraxa.org
National Fragile X Foundation
Tel: 00 1 (0)925-938-9300
Fax: 00 1 (0)925-938-9315
Email: NATLFX@FragileX.org
Website: www.fragileX.org
URUGUAY
Asociacion X Fragil del Uruguay
Tel: 00 598 (0)2 707 3305
Email: xfragil@xfragil.org.uy
Website: www.xfragil.org.uy