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 Professionals

We welcome enquiries for support and advice from

Our National Support & Information Service is available for professionals including

  • teachers
  • doctors
  • health care workers
  • social workers
  • carers, key workers
  • researchers
  • students

What does the service offer?

For on-line access to information about all aspects of fragile X (compiled by both family members, and by professionals who are experts in their field), please go to the What is Fragile X  information page. In addition to this we also offer

  • confidential support and information that is specific to your individual needs from our Family Support Workers: 

Wendy takes enquiries from a range of professionals including teachers, SENCOs, teaching assistants, Educational Psychologists, Speech and Language Therapists, GPs – in fact absolutely anyone working with a child affected by fragile X in all areas except Scotland. She has 30 years experience in special education. By contacting her directly you will be able to get information best suited to your particular needs including advice on which articles from the publication list will be the most helpful.

Jane takes enquiries from all professionals supporting adults affected by Fragile X in all areas except Scotland. Social workers, health professionals, support workers or anyone supporting an adult should contact Jane to obtain information best suited to their particular needs.

Sandra (sandra@fragilex.org.uk) takes all enquiries that are related to our families, both for children and adults, in Scotland ONLY.

  • a service to send to you, in the post, a free introductory fragile X information pack
  • for professionals in the UK, an Associate UK membership of the Society which incurs a fee of £15.00 per annum. This entitles the member to receive invitations to our family conferences, copies to our newsletters, and access to our research and information papers. To become an Associate member of the Society please complete the  2 forms below (please note a new window will open for these forms whihc are in pdf files)' and return them to the Society with the appropriate fee. Once your application has been processed a confirmation letter will be sent to you

How to contact the Society

Telephone - Manned Monday to Friday 9am to 5pm - If our lines are engaged, please leave your name and     number and a message and we will return your call. In the UK call  01371 875100, and outside UK call  00 44 1371 875100

Email - Please send the email to info@fragilex.org.uk or go to: Contact Us

Letter - Please write to

The Fragile X Society
Rood End House
6 Stortford Road
Great Dunmow
Essex
CM6 1DA

Complaints

The Fragile X Society strives to provide the best possible service. However, if there is any aspect of our work that you are unhappy about please put your comments in writing and send them to:

Mr Steve Harris, Chair or Mr Tim Potter, Managing Director at

The Fragile X Society
Rood End House
6 Stortford Road
Great Dunmow
Essex
CM6 1DA

See also

Current UK Fragile X Studies
UK Research Reports

Fragile X Conferences
 

 

We welcome enquiries for support and advice from

Our National Support & Information Service is available for professionals including

  • teachers
  • doctors
  • health care workers
  • social workers
  • carers, key workers
  • researchers
  • students

What does the service offer?

For on-line access to information about all aspects of fragile X (compiled by both family members, and by professionals who are experts in their field), please go to the What is Fragile X  information page. In addition to this we also offer

  • confidential support and information that is specific to your individual needs from our Family Support Workers: 

Wendy takes enquiries from a range of professionals including teachers, SENCOs, teaching assistants, Educational Psychologists, Speech and Language Therapists, GPs – in fact absolutely anyone working with a child affected by fragile X in all areas except Scotland. She has 30 years experience in special education. By contacting her directly you will be able to get information best suited to your particular needs including advice on which articles from the publication list will be the most helpful.

Jane takes enquiries from all professionals supporting adults affected by Fragile X in all areas except Scotland. Social workers, health professionals, support workers or anyone supporting an adult should contact Jane to obtain information best suited to their particular needs.

Sandra (sandra@fragilex.org.uk) takes all enquiries that are related to our families, both for children and adults, in Scotland ONLY.

  • a service to send to you, in the post, a free introductory fragile X information pack
  • for professionals in the UK, an Associate UK membership of the Society which incurs a fee of £15.00 per annum. This entitles the member to receive invitations to our family conferences, copies to our newsletters, and access to our research and information papers. To become an Associate member of the Society please complete the  2 forms below (please note a new window will open for these forms whihc are in pdf files)' and return them to the Society with the appropriate fee. Once your application has been processed a confirmation letter will be sent to you

How to contact the Society

Telephone - Manned Monday to Friday 9am to 5pm - If our lines are engaged, please leave your name and     number and a message and we will return your call. In the UK call  01371 875100, and outside UK call  00 44 1371 875100

Email - Please send the email to info@fragilex.org.uk or go to: Contact Us

Letter - Please write to

The Fragile X Society
Rood End House
6 Stortford Road
Great Dunmow
Essex
CM6 1DA

Complaints

The Fragile X Society strives to provide the best possible service. However, if there is any aspect of our work that you are unhappy about please put your comments in writing and send them to:

Mr Steve Harris, Chair or Mr Tim Potter, Managing Director at

The Fragile X Society
Rood End House
6 Stortford Road
Great Dunmow
Essex
CM6 1DA

See also

Current UK Fragile X Studies
UK Research Reports

Fragile X Conferences
 

 

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA
DISCLAIMER:
Great care has been taken in the compilation and preparation of this site to ensure that the information included is accurate. However The Fragile X Society cannot accept responsibility for any errors or omissions. The information is provided for education and information purposes and you should obtain further information from your medical practitioner. We do not knowingly reproduce inaccurate or libellous material. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.

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