A very good source for the latest Fragile X research news is the website of the FRAXA Research Foundation.
FRAXA's mission is to accelerate progress toward effective treatments and a cure for Fragile X by funding the most promising research. FRAXA has funded $15 million in research. Their website address is www.fraxa.org.
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Febuary 2010 - Widespread news coverage
Brain clue may explain condition's 'hug aviodance'
The above, and many other media articles can be accessed using this link.
The BBC News article can be read here.
The Daily Mail article can be read here.
September 18th 2009 - News bulletin from FRAXA :
Today's Bloomberg news: a Eureka moment for Fragile X
In 2007, FRAXA medical director Dr. Mike Tranfaglia missed Thanksgiving dinner to present the key advances in Fragile X research to Roche scientists in Basel, Switzerland. It was well worth it, as Bloomberg news reported today: Roche kicked off a Fragile X research program and is poised to begin clinical trials this year.
Mike met with Dr. Luca Santarelli, Roche's head of central nervous system exploratory development, who said, in an interview with Bloomberg reporter, Dermot Doherty, "For a scientist, a Eureka moment is why we live and do this job. You have very few, but that was one of them." Read the Bloomberg article here.
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Furthermore:
FRAXA's newsletter giving an overview on current trials including minocycline, MGluR etc can be viewed as a pdf file within a new window, at http://www.fraxa.org/pdf/News08v2.pdf
The following articles report on current research studies regarding Fenobam and MGluR:
Research News in the Media
Other news articles related to fragile X can be found in the News Room page.
UK Fragile X Studies
In addition to the above, details of fragile X studies as reported in the Fragile X Society’s Newsletter and Research Supplements and at Family Conferences can be found in the UK Research Reports page.
See also
Current UK Fragile X Studies
Society's Research Policy
A very good source for the latest Fragile X research news is the website of the FRAXA Research Foundation.
FRAXA's mission is to accelerate progress toward effective treatments and a cure for Fragile X by funding the most promising research. FRAXA has funded $15 million in research. Their website address is www.fraxa.org.
***
Febuary 2010 - Widespread news coverage
Brain clue may explain condition's 'hug aviodance'
The above, and many other media articles can be accessed using this link.
The BBC News article can be read here.
The Daily Mail article can be read here.
September 18th 2009 - News bulletin from FRAXA :
Today's Bloomberg news: a Eureka moment for Fragile X
In 2007, FRAXA medical director Dr. Mike Tranfaglia missed Thanksgiving dinner to present the key advances in Fragile X research to Roche scientists in Basel, Switzerland. It was well worth it, as Bloomberg news reported today: Roche kicked off a Fragile X research program and is poised to begin clinical trials this year.
Mike met with Dr. Luca Santarelli, Roche's head of central nervous system exploratory development, who said, in an interview with Bloomberg reporter, Dermot Doherty, "For a scientist, a Eureka moment is why we live and do this job. You have very few, but that was one of them." Read the Bloomberg article here.
***
Furthermore:
FRAXA's newsletter giving an overview on current trials including minocycline, MGluR etc can be viewed as a pdf file within a new window, at http://www.fraxa.org/pdf/News08v2.pdf
The following articles report on current research studies regarding Fenobam and MGluR:
Research News in the Media
Other news articles related to fragile X can be found in the News Room page.
UK Fragile X Studies
In addition to the above, details of fragile X studies as reported in the Fragile X Society’s Newsletter and Research Supplements and at Family Conferences can be found in the UK Research Reports page.
See also
Current UK Fragile X Studies
Society's Research Policy