Current Fundraising Activities

The Fragile X Society’s 100 Club

If you would like to join the Society’s 100 Club with the chance of winning cash prizes every month of the year please either complete this form and send it to us (the address is on the form), or email Dorcas Slaney our Fundraising Officer at info@fragilex.org.uk,  or telephone the office on 01371 875100 or Contact Us.  

Stuck for a fundraising idea?

Why not look at the various events that have been registered on the 'JustGiving' website by our fundraisers? There is the full range here: marathon runners, weight loss projects, weddings and wedding anniversary celebrations, cycle rides, birthday celebrations, sponsored walks and tea parties......you name it, our members and supporters are doing it.....so do visit the JustGiving site and encourage them on....your donation will make a difference to our fragile X families.

We should like to thank all those who are raising funds for us and connecting with their supporters via the JustGiving site, good luck all of you, we wish you well on your various endeavours.... 

MAMMOTH 75 MILE CYCLE RIDE for Rob Beaton, a Director of the Society, and his friends from JEB Engineering Design Ltd.

Last year Rob held a large charity bike ride event raising money in aid of Fragile X. This year, he has got together with a group of friends and will be cycling 75miles, from Mildenhall, following the Peddars Way, and finishing in Hunstanton.

Thank You, Rob and all your friends – ‘Pedal like crazy’, as one of your supporters on your JustGiving page put it……..

Dunmow Young Farmers - a youth organisation made up of 16-26 year olds and, despite the name, they aren't all farmers!

Essex Young Farmers is run by its members for its members so everyone has the chance to have a say in what goes on. There really is something for everyone, be it organising events, playing sports, fundraising for charities or simply enjoying the social side of it all!

We were delighted to have been chosen to be the beneficieries of this great club's fundraisng activities last year.  Thank you, Dunmow Young Farmers.

Anthony Clark and the Wimborne 10 - Road Race

Anthony Clark is a regular runner for the Society  - We are very proud of his achievements and wish him and his fellow runners the best of luck for their races.

260 Mile Walk from Derbyshire to Scotland

Saturday 24th July 2010

Michael Devine, who has a nephew with fragile X, completed a 260 mile fundraising walk for the Society!!!   We are thoroughly impressed, and can't thank you enough Michael.

Now that I have picked myself up off the floor, here are the significant details:

Michael Devine
59 Main Street
Repton
Derbyshire
DE65 6EZ

Tel 01283 702705
Mob 07944 004855


Michael started from Edale in Derbyshire and finished at Kirk Yetholm in Scotland (Total 260 miles).Details of the route can be seen by clicking here.

 We followed his progress with great interest....... and admiration.

The 5th 100 mile bike ride & BBQ

Saturday 26th June 2010

Liz Henderson, a Director of the Society and her team of serious cyclists rode from Blairhall to St Andrews - A staggering distance of 100 miles with the usual BBQ afterwards!

Well done all of you, we hope your recovery time was not too long!

Cross Country Fun Ride & BBQ

Sunday 27th June 2010

Family member Robert Beaton says :

In April 2009 our son Kyle was diagnosed with Fragile X. At the time neither my wife or myself had any idea what Fragile X Syndrome was. Since that time we know that fragile X is a genetically inherited condition causing varying degrees of learning disability and developmental delay. It affects both boys and girls and is often accompanied by autistic like behavioural traits.

Our challenge was to not only raise money for the Fragile X Society, but also to raise awareness of Fragile X.

We arranged 2 cycle events. The first for the more competitive riders (approximately 11 miles long, with a choice of 1 -3 circuits), and the second for families and those who wanted to just have a bit of fun, but at the same time raise money for a good cause.

There was a marvellous BBQ for all after the event, with an admission fee of £3.00 per person (under 5's free) to cover the cost of a Hamburger and a Hotdog, salad & drink. All children were given a goody bag for taking part.

Isklar water generously supplied bottles of water for all persons taking part in the ride.

Please visit http://www.justgiving.com/Robert-Beaton for more information

Marathon Runner EXTRAORDINAIRE! 

8 Marathons in 12 Months (Challenge 2010)

When Anthony Clark's nephew and godson was diagnosed with fragile X in February 2009 Anthony wanted to do something to show his support --- and decided that he would set himself the challenge of completing 123.4 miles in 6 months in competitve races to raise awareness of fragile X and to raise funds for the Society.......

That was last year - Anthony's magnificant efforts were very well rewarded --- and now for 2010! Here's what Anthony has in mind next:

 
VLMThis challenge has 2 goals. Firstly, to raise money and awareness of Fragile X and The Fragile X Society and also for me to improve my marathon performance and time.

Completing Marathon de Paris 2009 in less than 3 hours, entitles me to a 'good for age' place and automatic entry to all official marathons including the Virgin London Marathon & Real-Berlin Marathon.

My Challenge 2010 'target time' for 26.2 miles is sub 02:50:00. This will be working towards a future time of sub 02:45:00, the time required for the ultimate Championship entry place.

Included in this challenge I am taking place in Votwo's signature endurance running event the Jurassic Coast Challenge along the Dorset coast path. A 26.2 mile marathon each day for 3 days running, jogging, walking or crawling from Lyme Regis to Poole along beautiful but brutal coastal terrain.  Heed the warning: The cowardly won't start and the weak won't finish.

 Please support Anthony, very little will do, and of course we shall all be very grateful if you can sponsor him in a big way! - there is a lot more information and ways in whcih to sponsor him on his website at http://www.fragilerunner.com/

The Fragile X Society’s Annual Lottery

This year the draw for our annual Lottery will take place at the end of November. Tickets are £1 each and can be obtained from the office, so if you would like to buy tickets or would like some to sell to family and friends please either telephone 01371 875100, email info@fragilex.org.uk or Contact Us

If you would like to donate a prize for our Lottery please: Contact Us

The Fragile X Society’s 100 Club

If you would like to join the Society’s 100 Club with the chance of winning cash prizes every month of the year please either complete this form and send it to us, or email Dorcas Slaney our Fundraising Officer at info@fragilex.org.uk,  or telephone the office on 01371 875100 or Contact Us

Fundraising Aids

We have items that you may wish to offer to sell as a part of your fundraing activities; with many of these including basic information about fragile X.

For example, selling our bookmarks or coasters at a tea party you are holding has the double benefit of helping to increase the amounts you are able to raise, and help to increase awareness of fragile X.

The complete set of what we can offer can be viewed here.

The Fragile X Society’s 100 Club

If you would like to join the Society’s 100 Club with the chance of winning cash prizes every month of the year please either complete this form and send it to us (the address is on the form), or email Dorcas Slaney our Fundraising Officer at info@fragilex.org.uk,  or telephone the office on 01371 875100 or Contact Us.  

Stuck for a fundraising idea?

Why not look at the various events that have been registered on the 'JustGiving' website by our fundraisers? There is the full range here: marathon runners, weight loss projects, weddings and wedding anniversary celebrations, cycle rides, birthday celebrations, sponsored walks and tea parties......you name it, our members and supporters are doing it.....so do visit the JustGiving site and encourage them on....your donation will make a difference to our fragile X families.

We should like to thank all those who are raising funds for us and connecting with their supporters via the JustGiving site, good luck all of you, we wish you well on your various endeavours.... 

MAMMOTH 75 MILE CYCLE RIDE for Rob Beaton, a Director of the Society, and his friends from JEB Engineering Design Ltd.

Last year Rob held a large charity bike ride event raising money in aid of Fragile X. This year, he has got together with a group of friends and will be cycling 75miles, from Mildenhall, following the Peddars Way, and finishing in Hunstanton.

Thank You, Rob and all your friends – ‘Pedal like crazy’, as one of your supporters on your JustGiving page put it……..

Dunmow Young Farmers - a youth organisation made up of 16-26 year olds and, despite the name, they aren't all farmers!

Essex Young Farmers is run by its members for its members so everyone has the chance to have a say in what goes on. There really is something for everyone, be it organising events, playing sports, fundraising for charities or simply enjoying the social side of it all!

We were delighted to have been chosen to be the beneficieries of this great club's fundraisng activities last year.  Thank you, Dunmow Young Farmers.

Anthony Clark and the Wimborne 10 - Road Race

Anthony Clark is a regular runner for the Society  - We are very proud of his achievements and wish him and his fellow runners the best of luck for their races.

260 Mile Walk from Derbyshire to Scotland

Saturday 24th July 2010

Michael Devine, who has a nephew with fragile X, completed a 260 mile fundraising walk for the Society!!!   We are thoroughly impressed, and can't thank you enough Michael.

Now that I have picked myself up off the floor, here are the significant details:

Michael Devine
59 Main Street
Repton
Derbyshire
DE65 6EZ

Tel 01283 702705
Mob 07944 004855


Michael started from Edale in Derbyshire and finished at Kirk Yetholm in Scotland (Total 260 miles).Details of the route can be seen by clicking here.

 We followed his progress with great interest....... and admiration.

The 5th 100 mile bike ride & BBQ

Saturday 26th June 2010

Liz Henderson, a Director of the Society and her team of serious cyclists rode from Blairhall to St Andrews - A staggering distance of 100 miles with the usual BBQ afterwards!

Well done all of you, we hope your recovery time was not too long!

Cross Country Fun Ride & BBQ

Sunday 27th June 2010

Family member Robert Beaton says :

In April 2009 our son Kyle was diagnosed with Fragile X. At the time neither my wife or myself had any idea what Fragile X Syndrome was. Since that time we know that fragile X is a genetically inherited condition causing varying degrees of learning disability and developmental delay. It affects both boys and girls and is often accompanied by autistic like behavioural traits.

Our challenge was to not only raise money for the Fragile X Society, but also to raise awareness of Fragile X.

We arranged 2 cycle events. The first for the more competitive riders (approximately 11 miles long, with a choice of 1 -3 circuits), and the second for families and those who wanted to just have a bit of fun, but at the same time raise money for a good cause.

There was a marvellous BBQ for all after the event, with an admission fee of £3.00 per person (under 5's free) to cover the cost of a Hamburger and a Hotdog, salad & drink. All children were given a goody bag for taking part.

Isklar water generously supplied bottles of water for all persons taking part in the ride.

Please visit http://www.justgiving.com/Robert-Beaton for more information

Marathon Runner EXTRAORDINAIRE! 

8 Marathons in 12 Months (Challenge 2010)

When Anthony Clark's nephew and godson was diagnosed with fragile X in February 2009 Anthony wanted to do something to show his support --- and decided that he would set himself the challenge of completing 123.4 miles in 6 months in competitve races to raise awareness of fragile X and to raise funds for the Society.......

That was last year - Anthony's magnificant efforts were very well rewarded --- and now for 2010! Here's what Anthony has in mind next:

 
VLMThis challenge has 2 goals. Firstly, to raise money and awareness of Fragile X and The Fragile X Society and also for me to improve my marathon performance and time.

Completing Marathon de Paris 2009 in less than 3 hours, entitles me to a 'good for age' place and automatic entry to all official marathons including the Virgin London Marathon & Real-Berlin Marathon.

My Challenge 2010 'target time' for 26.2 miles is sub 02:50:00. This will be working towards a future time of sub 02:45:00, the time required for the ultimate Championship entry place.

Included in this challenge I am taking place in Votwo's signature endurance running event the Jurassic Coast Challenge along the Dorset coast path. A 26.2 mile marathon each day for 3 days running, jogging, walking or crawling from Lyme Regis to Poole along beautiful but brutal coastal terrain.  Heed the warning: The cowardly won't start and the weak won't finish.

 Please support Anthony, very little will do, and of course we shall all be very grateful if you can sponsor him in a big way! - there is a lot more information and ways in whcih to sponsor him on his website at http://www.fragilerunner.com/

The Fragile X Society’s Annual Lottery

This year the draw for our annual Lottery will take place at the end of November. Tickets are £1 each and can be obtained from the office, so if you would like to buy tickets or would like some to sell to family and friends please either telephone 01371 875100, email info@fragilex.org.uk or Contact Us

If you would like to donate a prize for our Lottery please: Contact Us

The Fragile X Society’s 100 Club

If you would like to join the Society’s 100 Club with the chance of winning cash prizes every month of the year please either complete this form and send it to us, or email Dorcas Slaney our Fundraising Officer at info@fragilex.org.uk,  or telephone the office on 01371 875100 or Contact Us

Fundraising Aids

We have items that you may wish to offer to sell as a part of your fundraing activities; with many of these including basic information about fragile X.

For example, selling our bookmarks or coasters at a tea party you are holding has the double benefit of helping to increase the amounts you are able to raise, and help to increase awareness of fragile X.

The complete set of what we can offer can be viewed here.

 

Donate Now

Please do make sure that if your supporters are UK taxpayers that they complete a GiftAid Form so that we can claim the tax back from their donation on their behalf. Thank You.
**************************
Anthony Clarke -
Marathon Runner Extraordinaire
 
Cycle Rides
Rob Beaton & friends

Becky Jones Dance Company

 

Donate Now

Please do make sure that if your supporters are UK taxpayers that they complete a GiftAid Form so that we can claim the tax back from their donation on their behalf. Thank You.
**************************
Anthony Clarke -
Marathon Runner Extraordinaire
 
Cycle Rides
Rob Beaton & friends

Becky Jones Dance Company

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA
DISCLAIMER:
Great care has been taken in the compilation and preparation of this site to ensure that the information included is accurate. However The Fragile X Society cannot accept responsibility for any errors or omissions. The information is provided for education and information purposes and you should obtain further information from your medical practitioner. We do not knowingly reproduce inaccurate or libellous material. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.