260 Mile Walk from Derbyshire to Scotland
Saturday 24th July 2010
Michael Devine, who has a nephew with fragile X, is planning to do a 260 mile fundraising walk for the Society!!! We are thoroughly impressed, and can't thank you enough Michael.
Now that I have picked myself up off the floor, here are the significant details:
Michael Devine
59 Main Street
Repton
Derbyshire
DE65 6EZ
Date of birth 21/02/1956
Tel 01283 702705
Mob 07944 004855
Michael will be commencing the walk on Monday 5th July 2010 approx 0800hrs from Edale in Derbyshire and finishing on Saturday 24th July 2010 at Kirk Yetholm in Scotland (Total 260 miles).Deatils of the route can be seen by clicking here.
He has a camper van and driver as support and will be walking with one other person who will not be directly involved in fundraising.
If you would like to know more then I am sure Michael will be delighted to get a phone call from you; in the meantime we at the Society shall be following his progress with great interest....... and admiration.
Saturday 26th June 2010
Liz Henderson, a Director of the Society and her team of serious cyclists intend to ride from Blairhall to St Andrews! Don't let this staggering distance of 100 miles put you off from taking part though, as not everyone needs to cover the whole distance......and there is a barbeque afterwards when everyone can recover with a beer or two!
If you would like to take part or would like to sponsor Liz or one of her team then do please contact her at lizhenderson348@btinternet.com
Sunday 27th June 2010
Family member Robert Beaton says :
In April 2009 our son Kyle was diagnosed with Fragile X. At the time neither my wife or myself had any idea what Fragile X Syndrome was. Since that time we know that fragile X is a genetically inherited condition causing varying degrees of learning disability and developmental delay. It affects both boys and girls and is often accompanied by autistic like behavioural traits.
Our challenge is to now not only raise money for the Fragile X Society, but also to raise awareness of Fragile X.
We have arranged 2 cycle events. The first for the more competitive riders out there, will take place on the Red Run at High Lodge, which is approx 11 miles long, and there will be a choice of 1 -3 circuits, this will be your choice. The second will be for familys and those who want to just have a bit of fun, but at the same time raise money for a good cause.
There will be a BBQ for all who take part after the event. There will be an admission fee of £3.00 per person (under 5's free) this will cover the cost of a Hamburger and a Hotdog, salad & drink. All children will recieve a goody bag for taking part.
Isklar water have generously offered to supply us bottles of water for all persons taking part in the ride.
If you are interested in taking part in either of these events and would like more details please email rob@swallowmax.co.uk
IF YOU CANT MAKE THE EVENT PLEASE FEEL FREE TO VISIT THE LINK BELOW & MAKE A DONATION TO A VERY WORTHY CHARITY:-
Please also visit http://www.justgiving.com/Robert-Beaton
Marathon Runner EXTRAORDINAIRE!
8 Marathons in 12 Months (Challenge 2010)
When Anthony Clark's nephew and godson was diagnosed with fragile X in February 2009 Anthony wanted to do something to show his support --- and decided that he would set himself the challenge of completing 123.4 miles in 6 months in competitve races to raise awareness of fragile X and to raise funds for the Society.......
That was last year - Anthony's magnificant efforts were very well rewarded --- and now for 2010! Here's what Anthony has in mind next:
This challenge has 2 goals. Firstly, to raise money and awareness of Fragile X and The Fragile X Society and also for me to improve my marathon performance and time.
Completing Marathon de Paris 2009 in less than 3 hours, entitles me to a 'good for age' place and automatic entry to all official marathons including the Virgin London Marathon & Real-Berlin Marathon.
My Challenge 2010 'target time' for 26.2 miles is sub 02:50:00. This will be working towards a future time of sub 02:45:00, the time required for the ultimate Championship entry place.
Included in this challenge I am taking place in Votwo's signature endurance running event the Jurassic Coast Challenge along the Dorset coast path. A 26.2 mile marathon each day for 3 days running, jogging, walking or crawling from Lyme Regis to Poole along beautiful but brutal coastal terrain. Heed the warning: The cowardly won't start and the weak won't finish.
Please support Anthony, very little will do, and of course we shall all be very grateful if you can sponsor him in a big way! - there is a lot more information and ways in whcih to sponsor him on his website at http://www.fragilerunner.com/
The Pampered Chef - Cooking Show Fundraiser
Venue: The Flackwell Heath Community Centre,The Straight Bit, Flackwell Heath
On: Friday 16th October 2009,Time: 11:30 am – 1:30pm
Katherine Watts and Emma Sherwood organised a fundraising event where there was a cookery demonstration and the opportunity to buy some wonderful kitchen products that saves time and makes the cooks life easier in the kitchen!
Thank you very much Katherine and Emma - we hope you had a great day.
The 4th Fragile X 100 Mile Bike Ride
Liz Henderson and her fellow fundraisers completed a very successful day's fundraising for the Society by riding from St Andrews to Blairhall (100 mile round trip) on June 20th 2009. ..... followed with a BBQ and a beer or two afterwards. Thank you very much Liz, and all your friends who took part, and everyone who sponsored you - the funds raised will enable us to continue our support work for our fragile X families.
The money raised by their gargantuan efforts is still coming in....but it is still possible to sponsor her or any of the riders who took part, for more information please contact Liz on Liz@brucehaven.fsnet.co.uk
A New Social Dance Company Launches in Lincoln
The following are excerpts from the flyer for this fundraising activity :
Lincoln University graduate Becky Jones and Bishop Grosseteste University College student LeoSpowage launch their social dance company ‘DanceFX’ on Saturday 21st March at Sturton By Stow Village Hall with a Charity Fun Dance.
Becky said “We have had considerable support from both LincolnUniversity and Bishop Grosseteste in setting up our company and as I have a nephew who has Fragile-X genetic disorder we thought an immediate and fun way of thanking the community for that support was to hold a charity fun dance in aid of the Fragile-X Society.
Sturton has an excellent village hall and is where I was brought up so it is the obvious place to launch our new social dance company.” Leo, from Nettleham, explained “At our dances we lead and instruct our clients in a range of different dances.
Dancing has become very popular and is recognised as an excellent way of keeping fit, with some local authorities introducing dance lessons into schools to help tackle child obesity. Our company offers a range of dance related activities including workshops in modern jive, burlesque, styling and latin dance, as well as freestyles, charity events and similar activities!
For those wanting a more personal teaching experience, Dance FX offers private tuition to individuals and couples, of any level of ability, including preparation for special events such as the first dance at their wedding or important business dinner dances.”
Tickets for the Charity Fun Dance at Sturton Village Hall on the 21st March at 7.30 are £5.00 (all of which goes directly to the Fragile X Society) and available from 01427 788568, 01400 250949 or at the door on the night.
LATEST UPDATE : This was a very successful launch for Dance FX - we are grateful for thier support and wish Becky and Leo well for the future.
Motorcycle Expedition from the Top to the Bottom of the Americas
You can follow the progress of the heroic efforts made by Simon Siggs to raise awareness of fragile X, and money for the Society, in a new window, at his site www.fragilexpedition.blogspot.com . This is a large blog with many fantastic pictures, so may take a while to load, particularly if your linespeed is low, but there are facilities to make a donation at his site should you wish to encourage Simon to organise future fundraising adventures for the Society.
The Fragile X Society’s Annual Lottery
This year the draw for our annual Lottery will take place in November. Tickets are £1 each and will be on sale from August 2009.
If you would like to buy tickets or would like some to sell to family and friends please either telephone 01371 875100, email info@fragilex.org.uk or Contact Us
If you would like to donate a prize for our Lottery please: Contact Us
The Fragile X Society’s 100 Club
If you would like to join the Society’s 100 Club with the chance of winning cash prizes every month of the year please either email Dorcas Slaney at info@fragilex.org.uk, telephone 01371 875100 or Contact Us.
260 Mile Walk from Derbyshire to Scotland
Saturday 24th July 2010
Michael Devine, who has a nephew with fragile X, is planning to do a 260 mile fundraising walk for the Society!!! We are thoroughly impressed, and can't thank you enough Michael.
Now that I have picked myself up off the floor, here are the significant details:
Michael Devine
59 Main Street
Repton
Derbyshire
DE65 6EZ
Date of birth 21/02/1956
Tel 01283 702705
Mob 07944 004855
Michael will be commencing the walk on Monday 5th July 2010 approx 0800hrs from Edale in Derbyshire and finishing on Saturday 24th July 2010 at Kirk Yetholm in Scotland (Total 260 miles).Deatils of the route can be seen by clicking here.
He has a camper van and driver as support and will be walking with one other person who will not be directly involved in fundraising.
If you would like to know more then I am sure Michael will be delighted to get a phone call from you; in the meantime we at the Society shall be following his progress with great interest....... and admiration.
Saturday 26th June 2010
Liz Henderson, a Director of the Society and her team of serious cyclists intend to ride from Blairhall to St Andrews! Don't let this staggering distance of 100 miles put you off from taking part though, as not everyone needs to cover the whole distance......and there is a barbeque afterwards when everyone can recover with a beer or two!
If you would like to take part or would like to sponsor Liz or one of her team then do please contact her at lizhenderson348@btinternet.com
Sunday 27th June 2010
Family member Robert Beaton says :
In April 2009 our son Kyle was diagnosed with Fragile X. At the time neither my wife or myself had any idea what Fragile X Syndrome was. Since that time we know that fragile X is a genetically inherited condition causing varying degrees of learning disability and developmental delay. It affects both boys and girls and is often accompanied by autistic like behavioural traits.
Our challenge is to now not only raise money for the Fragile X Society, but also to raise awareness of Fragile X.
We have arranged 2 cycle events. The first for the more competitive riders out there, will take place on the Red Run at High Lodge, which is approx 11 miles long, and there will be a choice of 1 -3 circuits, this will be your choice. The second will be for familys and those who want to just have a bit of fun, but at the same time raise money for a good cause.
There will be a BBQ for all who take part after the event. There will be an admission fee of £3.00 per person (under 5's free) this will cover the cost of a Hamburger and a Hotdog, salad & drink. All children will recieve a goody bag for taking part.
Isklar water have generously offered to supply us bottles of water for all persons taking part in the ride.
If you are interested in taking part in either of these events and would like more details please email rob@swallowmax.co.uk
IF YOU CANT MAKE THE EVENT PLEASE FEEL FREE TO VISIT THE LINK BELOW & MAKE A DONATION TO A VERY WORTHY CHARITY:-
Please also visit http://www.justgiving.com/Robert-Beaton
Marathon Runner EXTRAORDINAIRE!
8 Marathons in 12 Months (Challenge 2010)
When Anthony Clark's nephew and godson was diagnosed with fragile X in February 2009 Anthony wanted to do something to show his support --- and decided that he would set himself the challenge of completing 123.4 miles in 6 months in competitve races to raise awareness of fragile X and to raise funds for the Society.......
That was last year - Anthony's magnificant efforts were very well rewarded --- and now for 2010! Here's what Anthony has in mind next:
This challenge has 2 goals. Firstly, to raise money and awareness of Fragile X and The Fragile X Society and also for me to improve my marathon performance and time.
Completing Marathon de Paris 2009 in less than 3 hours, entitles me to a 'good for age' place and automatic entry to all official marathons including the Virgin London Marathon & Real-Berlin Marathon.
My Challenge 2010 'target time' for 26.2 miles is sub 02:50:00. This will be working towards a future time of sub 02:45:00, the time required for the ultimate Championship entry place.
Included in this challenge I am taking place in Votwo's signature endurance running event the Jurassic Coast Challenge along the Dorset coast path. A 26.2 mile marathon each day for 3 days running, jogging, walking or crawling from Lyme Regis to Poole along beautiful but brutal coastal terrain. Heed the warning: The cowardly won't start and the weak won't finish.
Please support Anthony, very little will do, and of course we shall all be very grateful if you can sponsor him in a big way! - there is a lot more information and ways in whcih to sponsor him on his website at http://www.fragilerunner.com/
The Pampered Chef - Cooking Show Fundraiser
Venue: The Flackwell Heath Community Centre,The Straight Bit, Flackwell Heath
On: Friday 16th October 2009,Time: 11:30 am – 1:30pm
Katherine Watts and Emma Sherwood organised a fundraising event where there was a cookery demonstration and the opportunity to buy some wonderful kitchen products that saves time and makes the cooks life easier in the kitchen!
Thank you very much Katherine and Emma - we hope you had a great day.
The 4th Fragile X 100 Mile Bike Ride
Liz Henderson and her fellow fundraisers completed a very successful day's fundraising for the Society by riding from St Andrews to Blairhall (100 mile round trip) on June 20th 2009. ..... followed with a BBQ and a beer or two afterwards. Thank you very much Liz, and all your friends who took part, and everyone who sponsored you - the funds raised will enable us to continue our support work for our fragile X families.
The money raised by their gargantuan efforts is still coming in....but it is still possible to sponsor her or any of the riders who took part, for more information please contact Liz on Liz@brucehaven.fsnet.co.uk
A New Social Dance Company Launches in Lincoln
The following are excerpts from the flyer for this fundraising activity :
Lincoln University graduate Becky Jones and Bishop Grosseteste University College student LeoSpowage launch their social dance company ‘DanceFX’ on Saturday 21st March at Sturton By Stow Village Hall with a Charity Fun Dance.
Becky said “We have had considerable support from both LincolnUniversity and Bishop Grosseteste in setting up our company and as I have a nephew who has Fragile-X genetic disorder we thought an immediate and fun way of thanking the community for that support was to hold a charity fun dance in aid of the Fragile-X Society.
Sturton has an excellent village hall and is where I was brought up so it is the obvious place to launch our new social dance company.” Leo, from Nettleham, explained “At our dances we lead and instruct our clients in a range of different dances.
Dancing has become very popular and is recognised as an excellent way of keeping fit, with some local authorities introducing dance lessons into schools to help tackle child obesity. Our company offers a range of dance related activities including workshops in modern jive, burlesque, styling and latin dance, as well as freestyles, charity events and similar activities!
For those wanting a more personal teaching experience, Dance FX offers private tuition to individuals and couples, of any level of ability, including preparation for special events such as the first dance at their wedding or important business dinner dances.”
Tickets for the Charity Fun Dance at Sturton Village Hall on the 21st March at 7.30 are £5.00 (all of which goes directly to the Fragile X Society) and available from 01427 788568, 01400 250949 or at the door on the night.
LATEST UPDATE : This was a very successful launch for Dance FX - we are grateful for thier support and wish Becky and Leo well for the future.
Motorcycle Expedition from the Top to the Bottom of the Americas
You can follow the progress of the heroic efforts made by Simon Siggs to raise awareness of fragile X, and money for the Society, in a new window, at his site www.fragilexpedition.blogspot.com . This is a large blog with many fantastic pictures, so may take a while to load, particularly if your linespeed is low, but there are facilities to make a donation at his site should you wish to encourage Simon to organise future fundraising adventures for the Society.
The Fragile X Society’s Annual Lottery
This year the draw for our annual Lottery will take place in November. Tickets are £1 each and will be on sale from August 2009.
If you would like to buy tickets or would like some to sell to family and friends please either telephone 01371 875100, email info@fragilex.org.uk or Contact Us
If you would like to donate a prize for our Lottery please: Contact Us
The Fragile X Society’s 100 Club
If you would like to join the Society’s 100 Club with the chance of winning cash prizes every month of the year please either email Dorcas Slaney at info@fragilex.org.uk, telephone 01371 875100 or Contact Us.