Current Fundraising Activities

Fundraising Events that have been registered on the 'JustGiving' website:

      HAYLEY THORNE: GREAT SOUTH RUN PORTSMOUTH.

      Sunday 24th October 2010

      KIERAN SMITH: GREAT SOUTH RUN PORTSMOUTH.

        Sunday 24th October 2010

      KEITH HOLT: BERLIN MARATHON.

      Sunday 26th September 2010 

   ANTHONY CLARK: BERLIN MARATHON.

       Sunday 26th September 2010

      ROS WELLS: GREAT NORTH RUN.

       Sunday 19th September 2010

      STEPHEN HEDLEY: DORSET DIRT RIDE.

       Sunday 12th September 2010

      CLINTON BRANNIGAN: SLIMMING FOR FX.

       Monday 9th August 2010 for 3 months

 Thank you, and good luck all of you - we wish you well..... 

260 Mile Walk from Derbyshire to Scotland

Saturday 24th July 2010

Michael Devine, who has a nephew with fragile X, completed a 260 mile fundraising walk for the Society!!!   We are thoroughly impressed, and can't thank you enough Michael.

Now that I have picked myself up off the floor, here are the significant details:

Michael Devine
59 Main Street
Repton
Derbyshire
DE65 6EZ

Date of birth 21/02/1956

Tel 01283 702705
Mob 07944 004855


Michael started from Edale in Derbyshire and finished at Kirk Yetholm in Scotland (Total 260 miles).Details of the route can be seen by clicking here.

We followed his progress with great interest....... and admiration.

The 5th 100 mile bike ride & BBQ

Saturday 26th June 2010

Liz Henderson, a Director of the Society and her team of serious cyclists rode from Blairhall to St Andrews - A staggering distance of 100 miles with the usual BBQ afterwards! Well done all of you.

Cross Country Fun Ride & BBQ

Sunday 27th June 2010

Family member Robert Beaton says :

In April 2009 our son Kyle was diagnosed with Fragile X. At the time neither my wife or myself had any idea what Fragile X Syndrome was. Since that time we know that fragile X is a genetically inherited condition causing varying degrees of learning disability and developmental delay. It affects both boys and girls and is often accompanied by autistic like behavioural traits.

Our challenge was to not only raise money for the Fragile X Society, but also to raise awareness of Fragile X.

We arranged 2 cycle events. The first for the more competitive riders (approximately 11 miles long, with a choice of 1 -3 circuits), and the second for families and those who wanted to just have a bit of fun, but at the same time raise money for a good cause.

There was a marvellous BBQ for all after the event, with an admission fee of £3.00 per person (under 5's free) to cover the cost of a Hamburger and a Hotdog, salad & drink. All children were given a goody bag for taking part.

Isklar water generously supplied bottles of water for all persons taking part in the ride.

Please visit http://www.justgiving.com/Robert-Beaton for more information

Marathon Runner EXTRAORDINAIRE! 

8 Marathons in 12 Months (Challenge 2010)

When Anthony Clark's nephew and godson was diagnosed with fragile X in February 2009 Anthony wanted to do something to show his support --- and decided that he would set himself the challenge of completing 123.4 miles in 6 months in competitve races to raise awareness of fragile X and to raise funds for the Society.......

That was last year - Anthony's magnificant efforts were very well rewarded --- and now for 2010! Here's what Anthony has in mind next:

 
VLMThis challenge has 2 goals. Firstly, to raise money and awareness of Fragile X and The Fragile X Society and also for me to improve my marathon performance and time.

Completing Marathon de Paris 2009 in less than 3 hours, entitles me to a 'good for age' place and automatic entry to all official marathons including the Virgin London Marathon & Real-Berlin Marathon.

My Challenge 2010 'target time' for 26.2 miles is sub 02:50:00. This will be working towards a future time of sub 02:45:00, the time required for the ultimate Championship entry place.

Included in this challenge I am taking place in Votwo's signature endurance running event the Jurassic Coast Challenge along the Dorset coast path. A 26.2 mile marathon each day for 3 days running, jogging, walking or crawling from Lyme Regis to Poole along beautiful but brutal coastal terrain.  Heed the warning: The cowardly won't start and the weak won't finish.

 Please support Anthony, very little will do, and of course we shall all be very grateful if you can sponsor him in a big way! - there is a lot more information and ways in whcih to sponsor him on his website at http://www.fragilerunner.com/

The Pampered Chef - Cooking Show Fundraiser

Venue: The Flackwell Heath Community Centre,The Straight Bit, Flackwell Heath

On: Friday 16th October 2009,Time: 11:30 am – 1:30pm

Katherine Watts and Emma Sherwood organised a fundraising event where there was a cookery demonstration and the opportunity to buy some wonderful kitchen products that saves time and makes the cooks life easier in the kitchen! 

Thank you very much Katherine and Emma - we hope you had a great day.

The 4th Fragile X 100 Mile Bike Ride

 Liz Henderson and her fellow fundraisers completed a very successful day's fundraising for the Society by riding from St Andrews to Blairhall (100 mile round trip) on June 20th 2009. ..... followed with a BBQ and a beer or two afterwards. Thank you very much Liz, and all your friends who took part, and everyone who sponsored you - the funds raised will enable us to continue our support work for our fragile X families.

The money raised by their gargantuan efforts is still coming in....but it is still possible to sponsor her or any of the riders who took part, for more information please contact Liz on Liz@brucehaven.fsnet.co.uk

A New Social Dance Company Launches in Lincoln

The following are excerpts from the flyer for this fundraising activity :

Lincoln University graduate Becky Jones and Bishop Grosseteste University College student LeoSpowage launch their social dance company ‘DanceFX’ on Saturday 21st March at Sturton By Stow Village Hall with a Charity Fun Dance.  

Becky said “We have had considerable support from both LincolnUniversity and Bishop Grosseteste in setting up our company  and as I have a nephew who has Fragile-X genetic disorder we thought an immediate and fun way of thanking the community for that support was to hold a charity fun dance in aid of the Fragile-X Society.  

Sturton has an excellent village hall and is where I was brought up so it is the obvious place to launch our new social dance company.”   Leo, from Nettleham, explained “At our dances we lead and instruct our clients in a range of different dances.  

Dancing has become very popular and is recognised as an excellent way of keeping fit, with some local authorities introducing dance lessons into schools to help tackle child obesity.   Our company offers a range of dance related activities including workshops in modern jive, burlesque, styling and latin dance, as well as freestyles, charity events and similar activities!  

For those wanting a more personal teaching experience, Dance FX offers private tuition to individuals and couples, of any level of ability, including preparation for special events such as the first dance at their wedding or important business dinner dances.”  

Tickets for the Charity Fun Dance at Sturton Village Hall on the 21st March at 7.30 are £5.00 (all of which goes directly to the Fragile X Society) and available from  01427 788568, 01400 250949 or at the door on the night. 

LATEST UPDATE : This was a very successful launch for Dance FX - we are grateful for thier support and wish Becky and Leo well for the future. 

Motorcycle Expedition from the Top to the Bottom of the Americas

You can follow the progress of the heroic efforts made by Simon Siggs to raise awareness of fragile X, and money for the Society, in a new window, at his site www.fragilexpedition.blogspot.com . This is a large blog with many fantastic pictures, so may take a while to load, particularly if your linespeed is low, but there are facilities to make a donation at his site should you wish to encourage Simon to organise future fundraising adventures for the Society.

The Fragile X Society’s Annual Lottery

This year the draw for our annual Lottery will take place in November. Tickets are £1 each and will be on sale from August 2009.

If you would like to buy tickets or would like some to sell to family and friends please either telephone 01371 875100, email info@fragilex.org.uk or Contact Us

If you would like to donate a prize for our Lottery please: Contact Us

The Fragile X Society’s 100 Club

If you would like to join the Society’s 100 Club with the chance of winning cash prizes every month of the year please either email Dorcas Slaney at info@fragilex.org.uk,  telephone 01371 875100 or Contact Us.

 

Fundraising Aids

We have items that you may wish to offer to sell as a part of your fundraing activities; with many of these including basic information about fragile X.

For example, selling our bookmarks or coasters at a tea party you are holding has the double benefit of helping to increase the amounts you are able to raise, and help to increase awareness of fragile X.

THe complete set of what we can offer can be viewed here.

Fundraising Events that have been registered on the 'JustGiving' website:

      HAYLEY THORNE: GREAT SOUTH RUN PORTSMOUTH.

      Sunday 24th October 2010

      KIERAN SMITH: GREAT SOUTH RUN PORTSMOUTH.

        Sunday 24th October 2010

      KEITH HOLT: BERLIN MARATHON.

      Sunday 26th September 2010 

   ANTHONY CLARK: BERLIN MARATHON.

       Sunday 26th September 2010

      ROS WELLS: GREAT NORTH RUN.

       Sunday 19th September 2010

      STEPHEN HEDLEY: DORSET DIRT RIDE.

       Sunday 12th September 2010

      CLINTON BRANNIGAN: SLIMMING FOR FX.

       Monday 9th August 2010 for 3 months

 Thank you, and good luck all of you - we wish you well..... 

260 Mile Walk from Derbyshire to Scotland

Saturday 24th July 2010

Michael Devine, who has a nephew with fragile X, completed a 260 mile fundraising walk for the Society!!!   We are thoroughly impressed, and can't thank you enough Michael.

Now that I have picked myself up off the floor, here are the significant details:

Michael Devine
59 Main Street
Repton
Derbyshire
DE65 6EZ

Date of birth 21/02/1956

Tel 01283 702705
Mob 07944 004855


Michael started from Edale in Derbyshire and finished at Kirk Yetholm in Scotland (Total 260 miles).Details of the route can be seen by clicking here.

We followed his progress with great interest....... and admiration.

The 5th 100 mile bike ride & BBQ

Saturday 26th June 2010

Liz Henderson, a Director of the Society and her team of serious cyclists rode from Blairhall to St Andrews - A staggering distance of 100 miles with the usual BBQ afterwards! Well done all of you.

Cross Country Fun Ride & BBQ

Sunday 27th June 2010

Family member Robert Beaton says :

In April 2009 our son Kyle was diagnosed with Fragile X. At the time neither my wife or myself had any idea what Fragile X Syndrome was. Since that time we know that fragile X is a genetically inherited condition causing varying degrees of learning disability and developmental delay. It affects both boys and girls and is often accompanied by autistic like behavioural traits.

Our challenge was to not only raise money for the Fragile X Society, but also to raise awareness of Fragile X.

We arranged 2 cycle events. The first for the more competitive riders (approximately 11 miles long, with a choice of 1 -3 circuits), and the second for families and those who wanted to just have a bit of fun, but at the same time raise money for a good cause.

There was a marvellous BBQ for all after the event, with an admission fee of £3.00 per person (under 5's free) to cover the cost of a Hamburger and a Hotdog, salad & drink. All children were given a goody bag for taking part.

Isklar water generously supplied bottles of water for all persons taking part in the ride.

Please visit http://www.justgiving.com/Robert-Beaton for more information

Marathon Runner EXTRAORDINAIRE! 

8 Marathons in 12 Months (Challenge 2010)

When Anthony Clark's nephew and godson was diagnosed with fragile X in February 2009 Anthony wanted to do something to show his support --- and decided that he would set himself the challenge of completing 123.4 miles in 6 months in competitve races to raise awareness of fragile X and to raise funds for the Society.......

That was last year - Anthony's magnificant efforts were very well rewarded --- and now for 2010! Here's what Anthony has in mind next:

 
VLMThis challenge has 2 goals. Firstly, to raise money and awareness of Fragile X and The Fragile X Society and also for me to improve my marathon performance and time.

Completing Marathon de Paris 2009 in less than 3 hours, entitles me to a 'good for age' place and automatic entry to all official marathons including the Virgin London Marathon & Real-Berlin Marathon.

My Challenge 2010 'target time' for 26.2 miles is sub 02:50:00. This will be working towards a future time of sub 02:45:00, the time required for the ultimate Championship entry place.

Included in this challenge I am taking place in Votwo's signature endurance running event the Jurassic Coast Challenge along the Dorset coast path. A 26.2 mile marathon each day for 3 days running, jogging, walking or crawling from Lyme Regis to Poole along beautiful but brutal coastal terrain.  Heed the warning: The cowardly won't start and the weak won't finish.

 Please support Anthony, very little will do, and of course we shall all be very grateful if you can sponsor him in a big way! - there is a lot more information and ways in whcih to sponsor him on his website at http://www.fragilerunner.com/

The Pampered Chef - Cooking Show Fundraiser

Venue: The Flackwell Heath Community Centre,The Straight Bit, Flackwell Heath

On: Friday 16th October 2009,Time: 11:30 am – 1:30pm

Katherine Watts and Emma Sherwood organised a fundraising event where there was a cookery demonstration and the opportunity to buy some wonderful kitchen products that saves time and makes the cooks life easier in the kitchen! 

Thank you very much Katherine and Emma - we hope you had a great day.

The 4th Fragile X 100 Mile Bike Ride

 Liz Henderson and her fellow fundraisers completed a very successful day's fundraising for the Society by riding from St Andrews to Blairhall (100 mile round trip) on June 20th 2009. ..... followed with a BBQ and a beer or two afterwards. Thank you very much Liz, and all your friends who took part, and everyone who sponsored you - the funds raised will enable us to continue our support work for our fragile X families.

The money raised by their gargantuan efforts is still coming in....but it is still possible to sponsor her or any of the riders who took part, for more information please contact Liz on Liz@brucehaven.fsnet.co.uk

A New Social Dance Company Launches in Lincoln

The following are excerpts from the flyer for this fundraising activity :

Lincoln University graduate Becky Jones and Bishop Grosseteste University College student LeoSpowage launch their social dance company ‘DanceFX’ on Saturday 21st March at Sturton By Stow Village Hall with a Charity Fun Dance.  

Becky said “We have had considerable support from both LincolnUniversity and Bishop Grosseteste in setting up our company  and as I have a nephew who has Fragile-X genetic disorder we thought an immediate and fun way of thanking the community for that support was to hold a charity fun dance in aid of the Fragile-X Society.  

Sturton has an excellent village hall and is where I was brought up so it is the obvious place to launch our new social dance company.”   Leo, from Nettleham, explained “At our dances we lead and instruct our clients in a range of different dances.  

Dancing has become very popular and is recognised as an excellent way of keeping fit, with some local authorities introducing dance lessons into schools to help tackle child obesity.   Our company offers a range of dance related activities including workshops in modern jive, burlesque, styling and latin dance, as well as freestyles, charity events and similar activities!  

For those wanting a more personal teaching experience, Dance FX offers private tuition to individuals and couples, of any level of ability, including preparation for special events such as the first dance at their wedding or important business dinner dances.”  

Tickets for the Charity Fun Dance at Sturton Village Hall on the 21st March at 7.30 are £5.00 (all of which goes directly to the Fragile X Society) and available from  01427 788568, 01400 250949 or at the door on the night. 

LATEST UPDATE : This was a very successful launch for Dance FX - we are grateful for thier support and wish Becky and Leo well for the future. 

Motorcycle Expedition from the Top to the Bottom of the Americas

You can follow the progress of the heroic efforts made by Simon Siggs to raise awareness of fragile X, and money for the Society, in a new window, at his site www.fragilexpedition.blogspot.com . This is a large blog with many fantastic pictures, so may take a while to load, particularly if your linespeed is low, but there are facilities to make a donation at his site should you wish to encourage Simon to organise future fundraising adventures for the Society.

The Fragile X Society’s Annual Lottery

This year the draw for our annual Lottery will take place in November. Tickets are £1 each and will be on sale from August 2009.

If you would like to buy tickets or would like some to sell to family and friends please either telephone 01371 875100, email info@fragilex.org.uk or Contact Us

If you would like to donate a prize for our Lottery please: Contact Us

The Fragile X Society’s 100 Club

If you would like to join the Society’s 100 Club with the chance of winning cash prizes every month of the year please either email Dorcas Slaney at info@fragilex.org.uk,  telephone 01371 875100 or Contact Us.

 

Fundraising Aids

We have items that you may wish to offer to sell as a part of your fundraing activities; with many of these including basic information about fragile X.

For example, selling our bookmarks or coasters at a tea party you are holding has the double benefit of helping to increase the amounts you are able to raise, and help to increase awareness of fragile X.

THe complete set of what we can offer can be viewed here.

 

Donate Now

Becky Jones Dance Company

 

Donate Now

Becky Jones Dance Company

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA
DISCLAIMER:
Great care has been taken in the compilation and preparation of this site to ensure that the information included is accurate. However The Fragile X Society cannot accept responsibility for any errors or omissions. The information is provided for education and information purposes and you should obtain further information from your medical practitioner. We do not knowingly reproduce inaccurate or libellous material. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.