The Fragile X Society is committed to protecting your privacy and developing
technology that gives you the most powerful and safe online experience. This
Statement of Privacy applies to the The Fragile X Society Web
site and governs data collection and usage. By using the The Fragile X Society
website, you consent to the data practices described in this statement.
Collection of your Personal Information
The Fragile X Society collects personally
identifiable information, such as your e-mail address, name, home or work
address or telephone number. The Fragile X Society also collects anonymous
demographic information, which is not unique to you, such as your ZIP code,
age, gender, preferences, interests and favorites.
There is also information about your computer hardware and
software that is automatically collected by The Fragile X Society. This information
can include: your IP address, browser type, domain names, access times and
referring Web site addresses. This information is used by The Fragile X Society for
the operation of the service, to maintain quality of the service, and to
provide general statistics regarding use of the The Fragile X Society Web site.
Please keep in mind that if you directly disclose personally identifiable
information or personally sensitive data through The Fragile X Society public
message boards, this information may be collected and used by others. Note:
The Fragile X Society does not read any of your private online communications.
The Fragile X Society encourages you to review the privacy statements of Web sites
you choose to link to from The Fragile X Society so that you can understand how
those Web sites collect, use and share your information. The Fragile X Society is
not responsible for the privacy statements or other content on Web sites
outside of the The Fragile X Society and The Fragile X Society family of Web sites.
Use of your Personal Information
The Fragile X Society collects and uses your personal
information to operate the The Fragile X Society Web site and deliver the services
you have requested. The Fragile X Society also uses your personally identifiable
information to inform you of other products or services available from
The Fragile X Society and its affiliates. The Fragile X Society may also contact you
via surveys to conduct research about your opinion of current services or of
potential new services that may be offered.
The Fragile X Society does not sell,
rent or lease its customer lists to third parties. The Fragile X Society may, from
time to time, contact you on behalf of external business partners about a
particular offering that may be of interest to you. In those cases, your unique
personally identifiable information (e-mail, name, address, telephone number)
is not transferred to the third party. In addition, The Fragile X Society may share
data with trusted partners to help us perform statistical analysis, send you
email or postal mail, provide customer support, or arrange for deliveries. All
such third parties are prohibited from using your personal information except
to provide these services to The Fragile X Society, and they are required to
maintain the confidentiality of your information.
The Fragile X Society does not
use or disclose sensitive personal information, such as race, religion, or
political affiliations, without your explicit consent.
The Fragile X Society keeps
track of the Web sites and pages our customers visit within The Fragile X Society,
in order to determine what The Fragile X Society services are the most popular.
This data is used to deliver customized content and advertising within
The Fragile X Society to customers whose behavior indicates that they are
interested in a particular subject area.
The Fragile X Society Web sites will
disclose your personal information, without notice, only if required to do so
by law or in the good faith belief that such action is necessary to: (a)
conform to the edicts of the law or comply with legal process served on
The Fragile X Society or the site; (b) protect and defend the rights or property of
The Fragile X Society; and, (c) act under exigent circumstances to protect the
personal safety of users of The Fragile X Society, or the public.
The The Fragile X Society Web site use "cookies" to help you personalize your
online experience. A cookie is a text file that is placed on your hard disk by
a Web page server. Cookies cannot be used to run programs or deliver viruses to
your computer. Cookies are uniquely assigned to you, and can only be read by a
web server in the domain that issued the cookie to you.
One of the primary
purposes of cookies is to provide a convenience feature to save you time. The
purpose of a cookie is to tell the Web server that you have returned to a
specific page. For example, if you personalize The Fragile X Society pages, or
register with The Fragile X Society site or services, a cookie helps
The Fragile X Society to recall your specific information on subsequent visits.
This simplifies the process of recording your personal information, such as
billing addresses, shipping addresses, and so on. When you return to the same
The Fragile X Society Web site, the information you previously provided can be
retrieved, so you can easily use the The Fragile X Society features that you
You have the ability to accept or decline cookies. Most Web
browsers automatically accept cookies, but you can usually modify your browser
setting to decline cookies if you prefer. If you choose to decline cookies, you
may not be able to fully experience the interactive features of the
The Fragile X Society services or Web sites you visit.
Security of your Personal Information
The Fragile X Society secures your personal information from
unauthorized access, use or disclosure. The Fragile X Society secures the
personally identifiable information you provide on computer servers in a
controlled, secure environment, protected from unauthorized access, use or
disclosure. When personal information (such as a credit card number) is
transmitted to other Web sites, it is protected through the use of encryption,
such as the Secure Socket Layer (SSL) protocol.
Changes to this Statement
The Fragile X Society will occasionally update this Statement of Privacy to reflect
company and customer feedback. The Fragile X Society encourages you to periodically
review this Statement to be informed of how The Fragile X Society is protecting
The Fragile X Society welcomes your comments
regarding this Statement of Privacy. If you believe that The Fragile X Society has
not adhered to this Statement, please contact The Fragile X Society at firstname.lastname@example.org
will use commercially reasonable efforts to promptly determine and remedy the