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 Privacy Statement

The Fragile X Society is committed to protecting your privacy and developing technology that gives you the most powerful and safe online experience. This Statement of Privacy applies to the The Fragile X Society Web site and governs data collection and usage. By using the The Fragile X Society website, you consent to the data practices described in this statement.

Collection of your Personal Information

The Fragile X Society collects personally identifiable information, such as your e-mail address, name, home or work address or telephone number. The Fragile X Society also collects anonymous demographic information, which is not unique to you, such as your ZIP code, age, gender, preferences, interests and favorites.

There is also information about your computer hardware and software that is automatically collected by The Fragile X Society. This information can include: your IP address, browser type, domain names, access times and referring Web site addresses. This information is used by The Fragile X Society for the operation of the service, to maintain quality of the service, and to provide general statistics regarding use of the The Fragile X Society Web site.

Please keep in mind that if you directly disclose personally identifiable information or personally sensitive data through The Fragile X Society public message boards, this information may be collected and used by others. Note: The Fragile X Society does not read any of your private online communications.

The Fragile X Society encourages you to review the privacy statements of Web sites you choose to link to from The Fragile X Society so that you can understand how those Web sites collect, use and share your information. The Fragile X Society is not responsible for the privacy statements or other content on Web sites outside of the The Fragile X Society and The Fragile X Society family of Web sites.

Use of your Personal Information

The Fragile X Society collects and uses your personal information to operate the The Fragile X Society Web site and deliver the services you have requested. The Fragile X Society also uses your personally identifiable information to inform you of other products or services available from The Fragile X Society and its affiliates. The Fragile X Society may also contact you via surveys to conduct research about your opinion of current services or of potential new services that may be offered.

The Fragile X Society does not sell, rent or lease its customer lists to third parties. The Fragile X Society may, from time to time, contact you on behalf of external business partners about a particular offering that may be of interest to you. In those cases, your unique personally identifiable information (e-mail, name, address, telephone number) is not transferred to the third party. In addition, The Fragile X Society may share data with trusted partners to help us perform statistical analysis, send you email or postal mail, provide customer support, or arrange for deliveries. All such third parties are prohibited from using your personal information except to provide these services to The Fragile X Society, and they are required to maintain the confidentiality of your information.

The Fragile X Society does not use or disclose sensitive personal information, such as race, religion, or political affiliations, without your explicit consent.

The Fragile X Society keeps track of the Web sites and pages our customers visit within The Fragile X Society, in order to determine what The Fragile X Society services are the most popular. This data is used to deliver customized content and advertising within The Fragile X Society to customers whose behavior indicates that they are interested in a particular subject area.

The Fragile X Society Web sites will disclose your personal information, without notice, only if required to do so by law or in the good faith belief that such action is necessary to: (a) conform to the edicts of the law or comply with legal process served on The Fragile X Society or the site; (b) protect and defend the rights or property of The Fragile X Society; and, (c) act under exigent circumstances to protect the personal safety of users of The Fragile X Society, or the public.

Use of Cookies

The The Fragile X Society Web site use "cookies" to help you personalize your online experience. A cookie is a text file that is placed on your hard disk by a Web page server. Cookies cannot be used to run programs or deliver viruses to your computer. Cookies are uniquely assigned to you, and can only be read by a web server in the domain that issued the cookie to you.

One of the primary purposes of cookies is to provide a convenience feature to save you time. The purpose of a cookie is to tell the Web server that you have returned to a specific page. For example, if you personalize The Fragile X Society pages, or register with The Fragile X Society site or services, a cookie helps The Fragile X Society to recall your specific information on subsequent visits. This simplifies the process of recording your personal information, such as billing addresses, shipping addresses, and so on. When you return to the same The Fragile X Society Web site, the information you previously provided can be retrieved, so you can easily use the The Fragile X Society features that you customized.

You have the ability to accept or decline cookies. Most Web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. If you choose to decline cookies, you may not be able to fully experience the interactive features of the The Fragile X Society services or Web sites you visit.

Security of your Personal Information

The Fragile X Society secures your personal information from unauthorized access, use or disclosure. The Fragile X Society secures the personally identifiable information you provide on computer servers in a controlled, secure environment, protected from unauthorized access, use or disclosure. When personal information (such as a credit card number) is transmitted to other Web sites, it is protected through the use of encryption, such as the Secure Socket Layer (SSL) protocol.

Changes to this Statement

The Fragile X Society will occasionally update this Statement of Privacy to reflect company and customer feedback. The Fragile X Society encourages you to periodically review this Statement to be informed of how The Fragile X Society is protecting your information.

Contact Information

The Fragile X Society welcomes your comments regarding this Statement of Privacy. If you believe that The Fragile X Society has not adhered to this Statement, please contact The Fragile X Society at admin@fragilex.org.uk. We will use commercially reasonable efforts to promptly determine and remedy the problem.

Charity registration number 1127861 - The Fragile X Society Registered Charity and Limited Company Registered in England
Company registration number 6724061 - Registered office: Rood End House, 6 Stortford Road, Great Dunmow, Essex CM6 1DA
DISCLAIMER:
Great care has been taken in the compilation and preparation of this site to ensure that the information included is accurate. However The Fragile X Society cannot accept responsibility for any errors or omissions. The information is provided for education and information purposes and you should obtain further information from your medical practitioner. We do not knowingly reproduce inaccurate or libellous material. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites.

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