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Support. Connect. Shared Strength.

Help us continue to provide and develop free support and information to individuals, families and professionals impacted by Fragile X Syndrome.

Make a Difference Today

Our Mission

The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to families and professionals they work with. Working together with those affected, the Society supports an inclusive community of people who understand the specific needs of Fragile X.

What is Fragile X?

Diagnosis

How We Help

Become a Friend of Fragile X

Events & Activities

Events

We organise a number of events throughout the year, from our Family Weekend to our Conference. Find out more.

Annual General Meeting 2024

Virtual AGM to take place on Monday 16th September 2024. More details to follow.

More Events

Fundraising at Fragile X

The Fragile X Society rely on fundraising to continue providing vital services and support to those affected by Fragile X Syndrome.

We depend on the kind support of people just like you, to help us continue our vital work.

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Latest News

The latest news about our charity, research and practical tips, as well as personal and fundraising stories.

Tips for the festive season:

With Christmas approaching, we can see many changes around us. From decorations and lights appearing, to Christmas foods and gifts in the...

What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome? Cardiff University

What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome? I...