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Support. Connect. Shared Strength.

 

Help us continue to provide and develop free support and information to individuals, families and professionals impacted by Fragile X Syndrome.

Our Mission

The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to families and professionals they work with. Working together with those affected, the Society supports an inclusive community of people who understand the specific needs of Fragile X.

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Events & Activities

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Events

We organise a number of events throughout the year, from our Family Weekend to our Conference.  Find out more.

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Save The Date

Our Edinburgh Conference will be on the 22nd March 2025 at Novotel Edinburgh Park.

More details to follow in the New Year. 

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Fundraising at Fragile X

The Fragile X Society rely on fundraising to continue providing vital services and support to those affected by Fragile X Syndrome.

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We depend on the kind support of people just like you, to help us continue our vital work. 

Latest News

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The latest news about our charity, research and practical tips, as well as personal and fundraising stories.

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