Alison Field, our Families & Professional Advisor, has authored this blog containing sensory information and references that she believes...

Increasing awareness and driving change for the 300 million individuals globally affected by a rare disease, along with their families...

Nathasha Gardi is presently working on her master's dissertation, which is a project titled "What do you think about hearing aids?"...

Sabrina is a parent of a child with Fragile X and a medical professional. She appreciates the complexities of understanding the...

Steve Harris, the FX Chair, was invited by the Deacon at the Trades House of Glasgow to receive a cheque. The Bakers organized a charity...

We are delighted to share with you the news that Olia Hercules has agreed to become an Ambassador for the Fragile X Society. Olia is a...

Flo Read, a Research Assistant at the School of Biomedical Sciences, interviews Dr. Marine Krzisch regarding Fragile X syndrome and...

Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...

As we start 2025 lets celebrate all of our achievements of 2024.

Eddie and Ciara successfully finished the Winter Milton Keynes half marathon. Despite the terrible weather, Eddie completed the race with...

A couple of weeks ago Pete Richardson, Managing Director, was privileged to be able to deliver a presentation on Fragile X to the Leeds...

During the Charity Stewards’ Lodge meeting at Chingford Masonic Hall on November 6th, Pete was thrilled to present on Fragile X to an...

With Christmas approaching, we can see many changes around us. From decorations and lights appearing, to Christmas foods and gifts in the...

What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome?   I...

Please donate generously to us on Black Friday!!! https://www.fragilex.org.uk/make-a-donation Let’s be honest no one needs reindeer...

We received a lovely story from Ciara and Eddie. They are both taking part in the Milton Keynes Winter Half Marathon to raise awareness...

We would like to say a massive thank you to Stephen, Keith and Milo.   Stephen who has Fragile X syndrome, decided he would love to raise...

Alison Field, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week: I hope...

Thank you to Adam, who has kindly chosen to fundraise for the Fragile X Society. Adam chose to support the Society due to his nephew...