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Jun 12
Gemma's Fundraiser for Fragile X
We would like to say a massive thank you to Gemma, Andy, their son and all of their friends who took part in the Sutton Coldfield fun run...
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Jun 6
Birmingham Conference 2024
We were delighted to see and welcome so many of you to our Fragile X Society Conference held at the Priory Rooms Conference in Birmingham...
95 views
Nov 1, 2023
A Rare Find is released this Sunday, 5th November 2023
The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...
112 views
Jun 21, 2023
Leicester Fragile X Hub
Today I’d like to share some really exciting news about plans to develop a Specialist Fragile X Hub in Leicester and how you can be...
483 views
Feb 28, 2023
Rare Disease Day: 28 February 2023
NEW: watch our animated video raising awareness of Fragile X and associated conditions, to mark Rare Disease Day 2023.
87 views
Feb 8, 2023
We are hiring!
We are seeking to recruit a part-time Office Administrator to work at our office in Great Dunmow Essex. Find out more including how to apply
66 views
Jan 5, 2023
Farewell from Mark Smith
Director, Mark Smith, says goodbye to the Fragile X Society Board, and shares what inspired him to get involved.
199 views
Jan 3, 2023
Newborn bloodspot screening
An update from the Chair of our Board of Directors, Kirsten Johnson
193 views
Nov 30, 2022
Calling all members in Northern Ireland!
Would you like to help shape support for Fragile X families in Northern Ireland?
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