Increasing awareness and driving change for the 300 million individuals globally affected by a rare disease, along with their families...

Steve Harris, the FX Chair, was invited by the Deacon at the Trades House of Glasgow to receive a cheque. The Bakers organized a charity...

We are delighted to share with you the news that Olia Hercules has agreed to become an Ambassador for the Fragile X Society. Olia is a...

Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...

We would like to say a massive thank you to Gemma, Andy, their son and all of their friends who took part in the Sutton Coldfield fun run...

We were delighted to see and welcome so many of you to our Fragile X Society Conference held at the Priory Rooms Conference in Birmingham...

The UK currently screens newborns for just 9 rare but serious conditions whereas the USA tests for up to 59. Local filmmaker John Lee...

Today I’d like to share some really exciting news about plans to develop a Specialist Fragile X Hub in Leicester and how you can be...

NEW: watch our animated video raising awareness of Fragile X and associated conditions, to mark Rare Disease Day 2023.