For International Fragile X Day on 10 Oct, FraXI is creating a new video. Please send in a video clip about what Fragile X means for you.

The Down Syndrome Act: a step forward maybe...But what about Fragile X? The recent Down Syndrome Act has led to an outpouring of strong...

Jessica Bolton has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

Jan Wright, our contract worker in Northern Ireland, has shared this update on what's been happening in Northern Ireland Hello from...

Please help us raise awareness for International Fragile X Awareness Day on 10 October by asking councils to light up a landmark in blue!

A few highlights from our Family Weekend at the fantastic Thomley in Worminghall. Thanks to everyone who joined us!

Mencap would like to invite people with a learning disability to take part in their 2022 Big Learning Disability Survey! Have your say:

Launch of Fragile X International (FraXI), a new organisation for families and healthcare professionals who live or work with Fragile X

Our Fragile X Society here in the UK is part of a growing network of countries dedicated to supporting the Fragile X Community and I...

Join us on online on Thurs 17 Feb 7.30pm for ‘Managing transitions and planning for the future', with Christine Towers of Together Matters