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Apr 16, 2020
What will your 2.6 Challenge be? Help save UK charities... including the Fragile X Society!
Take on the 2.6 challenge and raise funds to save our charity!
183 views
Apr 8, 2020
Supporting Children with Fragile X Syndrome during Lockdown: Some Tips
Supporting children with Fragile X Syndrome during lockdown: some tips
440 views
Apr 2, 2020
Update on benefits: coronavirus
Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries), highlights some recent changes to benefits
1,263 views
Apr 1, 2020
We're all at home - help!
Some tips for staying at home from Jane Oliver, Senior Families and Professionals Advisor at The Fragile X Society
347 views
Mar 25, 2020
Open letter from Minister Vicky Ford to the SEND Sector
Parliamentary Under-Secretary of State for Children and Families, Vicky Ford MP, has issued an open letter for children and young people wit
218 views
Mar 12, 2020
Cancelled: Family Weekend at Thomley, May 2020
Our planned Family Weekend at Thomley, May 2020, has been cancelled due to current situation with Coronavirus. Further details to follow.
41 views
Jan 30, 2020
Fragile X Premutation Associated Conditions (FXPAC) Statement
A European Fragile X Network meeting discussed the term FXAND and recent research on conditions affecting Fragile X premutation carriers.
1,382 views
Nov 28, 2019
Families in Birmingham: We need you to help with our film!
The up-coming Rare Film Festival, will shine the light on the experiences of people with rare conditions (affecting fewer than 1 in 2000...
88 views
Nov 26, 2019
We Need You! Opportunity for a Volunteer Grants Officer
We are looking for an individual who can use their experience in grant writing to further the work of our passionate, small, national...
51 views
Nov 26, 2019
Welcome, Kate!
Welcome Kate, our new Administrative and Communications Coordinator! We are delighted to welcome Kate Williams to our team as...
93 views
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