Paula Milne Let’s go right back to the beginning for my little family. I shall start off by introducing ourselves. I am Paula (hurtling...

Sarah & Lucie Wakeford 25 Years Ago Twenty five years ago Fragile X was not in our orbit but it entered our world in the summer of 1994....

Kerry page When I first got my eldest boy George, then 2, diagnosed with Fragile X Syndrome, I had no clue what it was, whether he would...

Janine Peat 1990 Geoffrey had been just diagnosed. In the days before the internet, let alone Facebook, I knew no one who had a child...

Jim Paterson Martin, our youngest child, was diagnosed in Edinburgh with Fragile X Syndrome when he was nine years old, but it was...

Hannah Bayly & Jo Barr There’s something very humbling about setting about writing a story that comes from deep within the heart; and...

Kathryn Silk 1990 Katherine and Susan in 1990 Ian and Howard in 1990 Our father was seventy-four at the time and looking after two sons,...

Pippa Wyndham-Pearce shares daughter Chloe's story, and reflects on her growing confidence as she moves from her teens into young...

“My name is Elizabeth Leath. I am a pre-mutation carrier of Fragile X Syndrome, and I have 2 little girls with the full mutation. Fragile...

Edel Harris shares the story, of son Ross gaining independence, and moving in to his own flat. "My son Ross is 23 and was diagnosed with...