Flo Read, a Research Assistant at the School of Biomedical Sciences, interviews Dr. Marine Krzisch regarding Fragile X syndrome and...

What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome?   I...

The University of Surrey is currently conducting a research study that aims to explore the experiences of parents and carers who have...

TouchFX study  - Touch sensitivity in fragile X syndrome Researchers from the Patrick Wild Centre are currently looking for volunteers to...

Dr Gaia Scerif (Uni of Oxford), Dr Emily Farran (Uni of Surrey), and Dr Jo Van Herwegen (UCL) are currently looking for volunteers (4-9...

University of Surrey are looking to improve a free teacher training resource. This resource will be focused on supporting children with...

Shape Research, Change Lives are setting priorities in genetic syndrome research. Below we have added some of their supporting documents....

An update from Dr Natali Bozhilova on international survey on pain experience in people with Prader-Willi, Williams and Fragile X syndromes

An udpdate on a study into the importance of psychological support for parents/caregivers of children with a rare condition at diagnosis

An update from Dr Natali Bozhilova on a recent study