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"What do you think about hearing aids"
Nathasha Gardi is presently working on her master's dissertation, which is a project titled "What do you think about hearing aids?"...
Feb 25
22 views

Fragile X Syndrome: What you need to know about this rare genetic condition
Flo Read, a Research Assistant at the School of Biomedical Sciences, interviews Dr. Marine Krzisch regarding Fragile X syndrome and...
Jan 23
109 views

Touch FX
Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...
Jan 21
57 views


What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome? Cardiff University
What are the challenges of developing independence and supporting the quality of life of adult males affected by Fragile X Syndrome? I...
Nov 14, 2024
156 views

Experience of Navigating Autism Assessment
The University of Surrey is currently conducting a research study that aims to explore the experiences of parents and carers who have...
Oct 22, 2024
56 views

Touch FXS Study
TouchFX study - Touch sensitivity in fragile X syndrome Researchers from the Patrick Wild Centre are currently looking for volunteers to...
Sep 3, 2024
47 views


Early Pathways to Independence in Numeracy for Children with Genetic Syndromes - MathMIND
Dr Gaia Scerif (Uni of Oxford), Dr Emily Farran (Uni of Surrey), and Dr Jo Van Herwegen (UCL) are currently looking for volunteers (4-9...
Aug 29, 2024
77 views

Help improve teacher training
University of Surrey are looking to improve a free teacher training resource. This resource will be focused on supporting children with...
Aug 27, 2024
39 views


Shape Research, Change Lives
Shape Research, Change Lives are setting priorities in genetic syndrome research. Below we have added some of their supporting documents....
Jul 3, 2024
29 views


International Survey on Pain Experience
An update from Dr Natali Bozhilova on international survey on pain experience in people with Prader-Willi, Williams and Fragile X syndromes
Mar 8, 2023
193 views
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