Jo has shared this story of how her son, Dennis (known as Coach Deno) has coped with the death of Her Late Majesty Queen Elizabeth II

Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.

Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.

Laura has shared these great tips which helped her child cope with the recent hot weather.

Emma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...

Sarah has shared this story about her father's FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) journey.

Kunal wanted to share with you what he most enjoyed on his recent holiday to Dubai!

Jo shares her story of son Dennis' participation in the Neuro-GD Study run by Dr Andy Stanfield and colleagues at the Patrick Wild Centre

One of our members shared this story about her son's employment journey

One of our members highlights a problem their family has experienced, in the hope it may prevent something similar happening to yours.