International Fragile X Awareness Day 2022: 10 October
Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.
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Aug 17, 2022
Our family trip to the NFXF Conference, San Diego
Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.
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Aug 17, 2022
Five simple tips for hot weather
Laura has shared these great tips which helped her child cope with the recent hot weather.
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Aug 4, 2022
Fragile X and FXTAS: my family's story
Emma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...
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Jul 6, 2022
Dad's FXTAS journey
Sarah has shared this story about her father's FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) journey.
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May 19, 2022
Kunal's holiday to Dubai
Kunal wanted to share with you what he most enjoyed on his recent holiday to Dubai!
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Feb 24, 2022
The Neuro-GD Study: with Fragile X Coach Deno
Jo shares her story of son Dennis' participation in the Neuro-GD Study run by Dr Andy Stanfield and colleagues at the Patrick Wild Centre
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Feb 15, 2022
The kindness of strangers
One of our members shared this story about her son's employment journey
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Jan 20, 2022
Fraud
One of our members highlights a problem their family has experienced, in the hope it may prevent something similar happening to yours.
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Jan 13, 2022
Kunal's favourite activities
Kunal wanted to share with you some of the things he's enjoyed doing over the last few months.
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