top of page
Search


Kunal's favourite activities
Kunal wanted to share with you some of the things he's enjoyed doing over the last few months.
Jan 13, 2022
153 views


Coach Deno loses his Grandma Mini
Jo shares how her son, Dennis (known as Coach Deno) has coped with losing his beloved Grandma Mini
Jan 12, 2022
589 views


Dennis gets his vaccine
Jo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination
May 25, 2021
662 views


Pedal Power: Theo's Cycling Adventures
Petra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!
Apr 27, 2021
174 views


Melissa's March: 310,000 steps for Fragile X
Melissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X
Apr 19, 2021
256 views


Nip in the Bud video opportunity
A video request from Olivia Hird, Documentary Filmmaker for Nip in the Bud, which may be of interest to some of our Dads/male carers.
Apr 6, 2021
114 views


A sibling's viewpoint: Anne and Nick's story
Anne shares her story of growing up with her brother Nick, who has Fragile X Syndrome
Feb 23, 2021
804 views


'The best book I have read on Fragile X Syndrome'
A review of 'Mental Essence' by Emilie Weight from Jonathan Herring, Honorary Advisor to The Fragile X Society 'This book is the best...
Feb 2, 2021
719 views


Kunal Keeping Busy
Kunal’s story which was written before the current lockdown Kunal would like to share with you all what has been happening in his life...
Jan 28, 2021
122 views


Lola's Lockdown
Claire shared these lovely photos of her daughter Lola "Here we are again in lockdown number 3! We have found it a bit more of a...
Jan 26, 2021
256 views
bottom of page