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Five Easy Ways to Support The Fragile X Society
Some simple suggestions as to how you can support The Fragile X Society
Jun 29, 2021
Introducing Dean, our Virgin Money London Marathon 2021 runner
We're delighted to announce that Dean Whitmore will be running the marathon on our behalf. Here, he tells us what inspired him to run for us
Jun 23, 2021
Dennis gets his vaccine
Jo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination
May 25, 2021
Pedal Power: Theo's Cycling Adventures
Petra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!
Apr 27, 2021
Virgin Money London Marathon 2021
Virgin Money London Marathon 2021 place for The Fragile X Society
Apr 21, 2021
Ready, Steady, GROW!
This spring, we're hoping to spread some sunshine by holding a 'grow your own sunflower' competition!
Apr 21, 2021
Melissa's March: 310,000 steps for Fragile X
Melissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X
Apr 19, 2021
Jackie and Matt's 2 million step challenge
Jackie and son, Matt, share their story of their travels on foot to raise funds and awareness of Fragile X
Apr 17, 2021
The Three Peaks - with a twist!
The Three Peaks - with a twist! Chris shares his remarkable fundraising (and fitness!) challenge.
Apr 12, 2021
Nip in the Bud video opportunity
A video request from Olivia Hird, Documentary Filmmaker for Nip in the Bud, which may be of interest to some of our Dads/male carers.
Apr 6, 2021
FUNdraising!
Please share your fundraising stories and photos with us!
Mar 25, 2021
Join us for our Easter Virtual Coffee Morning on Saturday 3 April at 10.30am
Join our Easter Virtual Coffee Morning to chat and connect with friends old and new!
Mar 23, 2021
Your child's sleep
Some strategies for supporting your child's sleep from Caroline Pringle, in the latest edition of her 'Snippets of Advice' blog series
Mar 10, 2021
Online Workshop from Birketts Solicitors: Tuesday 9 March 2021 at 7.30pm
'What legal means are available to protect your loved ones?' I am delighted to announce that on Tuesday 9 March 2021 at 7:30pm we will be...
Mar 9, 2021
Covid 19 vaccine prioritised for people with learning disabilities
All people on the Learning Disability Register to be prioritised for Covid-19 vaccine
Feb 24, 2021
Supporting siblings of children with Fragile X
Follow-up to our online workshop for parents, and additional resources.
Feb 23, 2021
A sibling's viewpoint: Anne and Nick's story
Anne shares her story of growing up with her brother Nick, who has Fragile X Syndrome
Feb 23, 2021
Spotlight on young siblings
Welcome to our new 'special edition' series of blog articles focusing on siblings. Here, Clare Kassa (CEO of Sibs) offers tips for parents.
Feb 23, 2021
Costello Medical
Digitally Developing and Diversifying the Fragile X Society: Costello Medical to develop our digital services
Feb 17, 2021
Going Back to school and How to Support Your Child
NEW: Download Caroline's presentation and video on 'Returning Safely to School' here.
Feb 17, 2021
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