Fragile X Society Blog

Jan 28, 2021

Kunal Keeping Busy

Kunal’s story which was written before the current lockdown Kunal would like to share with you all what has been happening in his life...

120 views

Jan 26, 2021

Lola's Lockdown

Claire shared these lovely photos of her daughter Lola "Here we are again in lockdown number 3! We have found it a bit more of a...

251 views

Jan 13, 2021

Child Disability Payment pilot scheme areas in Scotland

In her statement to Parliament in November 2020, Shirley-Anne Somerville MSP, Cabinet Secretary for Social Security and Older People, set...

85 views

Jan 13, 2021

Covid-19 Update

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) There is a wealth of information to support families during this...

126 views

Jan 12, 2021

Another lockdown with your children at home

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) Well, we are in another lockdown; some of your children may be...

91 views

Dec 15, 2020

Online Workshop for Parents, from Sibs: Tuesday 26 January 2021 at 7.30pm

'Introduction to supporting siblings of children with Fragile X Syndrome' I am delighted to announce that on: Tuesday 26th January 2021...

50 views

Dec 14, 2020

Our services during Covid-19

How we can support you at this time: our helpline, website and online community are available

435 views

Dec 7, 2020

Digitally Developing and Diversifying the Fragile X Society Project 2021

An exciting opportunity to work with The Fragile X Society (part-time, temporary six month contract)

100 views

Nov 16, 2020

Fragile X Friday: please can you help us this Black Friday?

Thanks to your support as members of the Fragile X Society and some welcome grant successes this year we are delighted to have been able...

204 views

Nov 12, 2020

An open letter from Vicky Ford MP

Parliamentary Under-Secretary of State for Children and Families The latest letter (9 November 2020) from SEND Minister Vicky Ford MP in...

46 views

Oct 14, 2020

Our Fragile X Society Christmas Cards have arrived!

Our Fragile X Society Christmas Cards are now available to order from our online shop!

363 views

Oct 12, 2020

Fragile X Awareness Day 10 October 2020: Virtual Q&A Session

Fragile X Awareness Day 10 October 2020: Virtual Q&A session - video coming soon!

70 views

Sep 3, 2020

Face Coverings in Schools

Links to guidance throughout the UK on face coverings in schools

74 views

Aug 24, 2020

A silver lining: Christian's lockdown

Isabella shares her son Christian's lockdown activities.

282 views

Aug 6, 2020

Re-opening of adult day services and respite in Scotland

182 views

Jul 29, 2020

Photographs: can you help?

Please can you help us by sending in photographs we may use?

190 views

Jul 23, 2020

An open letter from Vicky Ford MP and Helen Whately MP

Open letter of 21 July 2020 from Vicky Ford MP and Helen Whately MP

149 views

Jul 15, 2020

Goodbye(-ish)! A note from Becky our out-going CEO.

Goodbye(ish)! A note from Becky, our outgoing CEO

203 views

Jul 14, 2020

Social Interactions in Children with Fragile X Syndrome and Other Neurodevelopmental Conditions

Social Interactions in Children with FXS and Other Neurodevelopmental Conditions: a research update

538 views

Jul 2, 2020

Attention, Learning and Memory in young people with Fragile X syndrome: Does social context matter?

Attention, Learning and Memory in young people with fragile X syndrome: Does social context matter?

352 views

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