The recently-established Medicines Discovery Institute is based within Cardiff University and aims to translate the latest in scientific...

The National Council for Voluntary Organisations (NCVO) has been championing volunteering and the voluntary sector for 100 years. To mark...

On talking to parents on the advice line one common issue is anxiety levels when transitioning from one activity to the next, e.g. going...

You will often see lists of facts about Fragile X Syndrome being circulated, detailing medicalised information focusing on the challenges...

What is the project? An exciting project which aims to develop a new system to help families address rigidity in their child’s routines...

Jeanie Kemp discovered she was a fragile X carrier only after the birth of her daughter Jessica’s first child James. James had lots of...

In January my dance school – PAD (Power Academy of Dance) performed our bi-annual dance show, our chosen charity is the Fragile X Society....

We were delighted and so grateful to be invited to complete training about Fragile X for learning disability nursing students at Kingston...

Over the past 6 and a half years, we have been very fortunate to be able to run a dedicated Scottish Project to provide support to...

​This article summarises an interview with Lou (age 45) about her experiences of living with the Fragile X premutation, which was...

​This article summarises an interview with Brianna about her experiences of living with the Fragile X premutation, which was conducted as...

​This article summarises an interview with 'Grace' (age 45) about her experiences of living with the Fragile X premutation, which was...

As a 27 year old woman with fragile X syndrome the world of dating can often be difficult and overwhelming. So, I thought the show 'The...

It is only fairly recently that research has started focusing on people who have the Fragile X premutation, i.e. individuals who have a...

I have now been working at the Fragile X Society for 2 months and have been made very welcome. My mentor Wendy was absolutely brilliant...

Just over 11 years ago I was working in a special school in North London. A colleague I had job shared with came to me and said “Wendy, I...

We often only see the limitations of someone with Fragile X. And not what they can do. Yet, their special abilities could add tremendous...

Challenging behaviours, such as self-injurious behaviour and aggression, are a significant concern for some people with Fragile X...

Ash joined our family aged 5. My children were then 20, 18 and 14 and they regularly rode and helped out with a friend’s horses. When...

“I remember reading about Pre-implantation Genetic Diagnosis about 10 years ago. Long before we were parents. It was only available...