Fragile X Society Blog

Dec 2, 2015

Top tips for Christmas!

Christmas can be a very exciting time; it is full of new and different activities, decorations and flashing lights, and (in my household...

163 views

Oct 21, 2015

We want to know what you think!

We need your help! It is really important to us that we provide the best support possible to you. In order to do that, we want your...

8 views

Sep 24, 2015

Want to look #fragileXtraordinary and raise awareness?

We are delighted to be working with Red Dog again this year to bring you some gorgeous awareness day tshirts! The tops are a great way of...

20 views

Sep 4, 2015

How do people with fragile X and autism differ in the way they look at other people?

New Research: Eye Gaze in Fragile X Syndrome Fragile X syndrome is associated with social difficulties and an increased prevalence of...

177 views

Sep 3, 2015

We need your help for Fragile X Awareness!

10th October is Eurpoean Fragile X Awareness Day, and we need your help to get the message out to the public! Last year we raised...

38 views

Aug 29, 2015

Putting the X in Alphabet Girl

Renny Krupinski and his wife and Kaitlin Howard are raising funds and awareness for Fragile X through their play, The Alphabet Girl...

27 views

Aug 27, 2015

Reading Development in Fragile X Syndrome

Reading Development in Fragile X Syndrome The ability to read is critical to the success of individuals with learning disabilities, as it...

945 views

Aug 21, 2015

Brain imaging research in Fragile X premutation carriers: Where we are and where we’re going

Introduction Figure 1. An fMRI brain scan looking at activation in the brain of a person with the Fragile X Premutation (research by...

382 views

Jul 10, 2015

Eye gaze measures could be important for improving medication trials for Fragile X Syndrome.

We all feel a little bit anxious when we meet new people for the first time. However, for individuals with fragile X, meeting new...

34 views

Jul 1, 2015

Fragile X Syndrome: Adulthood & Issues Facing Carriers

Jonathan Cohen (Medical Director, Fragile X Alliance Clinic), Rashelle Cohen (Neurodevelopmental Optometrist), Michael Cohen (Expert by...

51 views

May 1, 2015

25 Years On: Sarah and Lucie's Story

Written by Sarah and Lucie 25 Years Ago Twenty five years ago Fragile X was not in our orbit but it entered our world in the summer of...

217 views

May 1, 2015

A passion for Fragile X in Females

Written by Elizabeth My name is Elizabeth. I am a pre-mutation carrier of Fragile X Syndrome, and I have 2 little girls with the full...

164 views

May 1, 2015

25 Years On: Kerry's Story

Written by Kerry Oh those early days… When I first got my eldest boy George, then 2, diagnosed with Fragile X Syndrome, I had no clue...

214 views

May 1, 2015

25 Years On: Paula's Family Story

Written by Paula Let’s go right back to the beginning for my little family. I shall start off by introducing ourselves. I am Paula...

228 views

May 1, 2015

25 Years On: Supporting Siblings

Written by Kathryn 1990 Our father was seventy-four at the time and looking after two sons, Ian and Howard (aged forty-nine and forty),...

95 views

May 1, 2015

25 Years On: I Love My Job!

Written by Hannah and Jo There’s something very humbling about setting about writing a story that comes from deep within the heart; and...

121 views

May 1, 2015

25 Years On: Janine's Family Story

Written by Janine 1990 Geoffrey had been just diagnosed. In the days before the internet, let alone Facebook, I knew no one who had a...

130 views

May 1, 2015

25 Years On: Martin's First Flat

Written by Jim Martin, our youngest child, was diagnosed in Edinburgh with Fragile X Syndrome when he was nine years old, but it was...

129 views

Jan 21, 2015

The role of experiential knowledge of Fragile X Syndrome in the provision of information about prena

National Health Service (NHS) policy requires that information that is provided about genetic conditions, for which prenatal diagnostic...

48 views

Jan 15, 2015

Understanding infants and toddlers with fragile X syndrome: New Research

Background If you look at what we know about fragile X, most of it comes from research on older children, adolescents, and adults. So we...

5,429 views

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