Jessica Bolton has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.

Laura has shared these great tips which helped her child cope with the recent hot weather.

On 9 October this year, Annie Whiteside will be running the Lisbon Marathon to raise funds and awareness for Fragile X Society.

Emma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...

Jan Wright, our contract worker in Northern Ireland, has shared this update on what's been happening in Northern Ireland Hello from...

Please help us raise awareness for International Fragile X Awareness Day on 10 October by asking councils to light up a landmark in blue!

Information for our families in Scotland from our Families and Professionals Advisors

Sarah has shared this story about her father's FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) journey.

Caroline Pringle, Families and Professionals Advisor for Child Enquiries, shares some strategies for eating and mealtimes with your child.

A few highlights from our Family Weekend at the fantastic Thomley in Worminghall. Thanks to everyone who joined us!

Caroline Pringle, Families and Professionals Advisor for Child Enquiries, shares some tips for keeping your children safe online.

Luke Atterbury and friend, Jas, have recently tackled not one, but two, challenges in aid of the Fragile X Society

Mencap would like to invite people with a learning disability to take part in their 2022 Big Learning Disability Survey! Have your say:

Father and daughter team run 10k race in aid of Fragile X Society

Kunal wanted to share with you what he most enjoyed on his recent holiday to Dubai!

In April 2022, the term ‘mental retardation’ was officially removed from the expanded name of FMR1, and more inclusive names adopted.

Caroline Pringle, our Families and Professionals Advisor for Child Enquiries, shares some tips for the new school year

Launch of Fragile X International (FraXI), a new organisation for families and healthcare professionals who live or work with Fragile X

New and inclusive terminology to be adopted in scientific and clinical literature, improving respect for neurodiversity