Sarah & Lucie Wakeford 25 Years Ago Twenty five years ago Fragile X was not in our orbit but it entered our world in the summer of 1994....

Kerry page When I first got my eldest boy George, then 2, diagnosed with Fragile X Syndrome, I had no clue what it was, whether he would...

Janine Peat 1990 Geoffrey had been just diagnosed. In the days before the internet, let alone Facebook, I knew no one who had a child...

Jim Paterson Martin, our youngest child, was diagnosed in Edinburgh with Fragile X Syndrome when he was nine years old, but it was...

Hannah Bayly & Jo Barr There’s something very humbling about setting about writing a story that comes from deep within the heart; and...

Kathryn Silk 1990 Katherine and Susan in 1990 Ian and Howard in 1990 Our father was seventy-four at the time and looking after two sons,...

Pippa Wyndham-Pearce shares daughter Chloe's story, and reflects on her growing confidence as she moves from her teens into young...

“My name is Elizabeth Leath. I am a pre-mutation carrier of Fragile X Syndrome, and I have 2 little girls with the full mutation. Fragile...

Edel Harris shares the story, of son Ross gaining independence, and moving in to his own flat. "My son Ross is 23 and was diagnosed with...

Zoe Carroll shares her story, from diagnosis to family life now. "We received Charlie's diagnosis on his second birthday. The world...

In this story we hear from Lorraine Peacock, writing about her brother, John. "Our Fragile X journey as a family hasn't been an easy one....

Who I am My name is Kunal. I am a 29 year old man. I have Fragile X Syndrome. This affects my life in lots of ways. What is Fragile X? ...

X.X. (October 10th) is #InternationalFragileXAwarenessDay 2021! Find out more:

It's Fragile X Awareness Day on 10 October, so join us online for our first ever virtual 'Fragile X Fabulous Family Funday Sunday Quiz'!

Kim is running a virtual half marathon to raise funds and awareness for Fragile X

Pete's boxing match in aid of The Fragile X Society

Are you enthusiastic, keen to help and have time to give? We'd love to hear from you!

Caroline shares some tips for the transition to a new school or classroom in September.

Some simple suggestions as to how you can support The Fragile X Society

We're delighted to announce that Dean Whitmore will be running the marathon on our behalf. Here, he tells us what inspired him to run for us