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Mar 14, 2019
Our Fragile X Facts
You will often see lists of facts about Fragile X Syndrome being circulated, detailing medicalised information focusing on the challenges...
257 views
Mar 7, 2019
A funny thing happened on the way to Homebase
Jeanie Kemp discovered she was a fragile X carrier only after the birth of her daughter Jessica’s first child James. James had lots of...
141 views
Feb 13, 2019
Video: Identifying and meeting the health needs of people with Fragile X Syndrome
We were delighted and so grateful to be invited to complete training about Fragile X for learning disability nursing students at Kingston...
104 views
Jan 29, 2019
Celebrating Our Achievements in Scotland, as the Project Comes to an End.
Over the past 6 and a half years, we have been very fortunate to be able to run a dedicated Scottish Project to provide support to...
202 views
Jan 24, 2019
"I wanted to meet somebody who would treat me like a princess": Emily's experience of
As a 27 year old woman with fragile X syndrome the world of dating can often be difficult and overwhelming. So, I thought the show 'The...
1,064 views
Jan 10, 2019
Welcome, Caroline! Our New Families and Professionals Advisor
I have now been working at the Fragile X Society for 2 months and have been made very welcome. My mentor Wendy was absolutely brilliant...
133 views
Nov 27, 2018
Wendy's Retirement: Farewell messages & wise words
Just over 11 years ago I was working in a special school in North London. A colleague I had job shared with came to me and said “Wendy, I...
249 views
Nov 16, 2018
Ash and Tony's Story
Ash joined our family aged 5. My children were then 20, 18 and 14 and they regularly rode and helped out with a friend’s horses. When...
87 views
Nov 16, 2018
Preimplantation Genetic Diagnosis: A Family Story
“I remember reading about Pre-implantation Genetic Diagnosis about 10 years ago. Long before we were parents. It was only available...
197 views
Nov 16, 2018
Welcoming our new Chairperson!
We are delighted to introduce our new Chair: Dr Kirsten Johnson. "I am married to Jonathan and we have three wonderful daughters, two of...
158 views
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