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Nov 14, 2018
Newsletter Update: Move to Digital Communications
We are proud that we spend our funds responsibly and we constantly consider our services in light of our financial position. As you...
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Aug 16, 2018
We need you to help us raise awareness of Fragile X Syndrome all the way around the UK!
We are excited to announce our 2018 FragileXpedition! What is the FragileXpedition? We want to mark Fragile X Awareness Day (10th...
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Aug 2, 2018
Job Vacancy: Families and Professionals Advisor (Child Enquiries)
This is an exciting opportunity to make a valuable difference in the lives of individuals and families living with Fragile X Syndrome:...
146 views
Jul 31, 2018
Fragile: a new book by Cassie Capple
Cassie has recently contacted us about a book that she has written about her experiences of being a parent to a daughter with Fragile X...
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Mar 9, 2018
Never heard about Fragile X – associated Tremor/Ataxia Syndrome (FXTAS)?
FXTAS stands for Fragile X-associated Tremor/Ataxia syndrome (FXTAS) – a difficult word for a complex disorder. As a relatively “new”...
1,405 views
Dec 18, 2017
Fragile X Society Virgin Money London Marathon Runner Announced!
Thank you so much to everyone who applied to run the 2018 Virgin Money London Marathon for the Fragile X Society. As you may know, we...
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May 27, 2016
Sharing #fragileXtraordinary achievements!
At our Stirling Conference, held on Saturday 21st May, we were delighted to hear from individuals and family members sharing their...
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May 9, 2016
Pedal power raises £2,500 for The Fragile X Society!
On Saturday 9th April, Craig McDonald (our Chairman), wife Gillian, and twin sons Stuart and Matthew embarked on a fitness challenge, in...
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May 9, 2016
“For him, I’d climb the highest mountain...”
Reem Waines (one of our lovely board members) has for the second time taken on the #fragileXtraordinary challenge of climbing to Base...
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Apr 21, 2016
Clinic for Genetic Forms of Neurodegeneration & Movement Disorders
New Fragile X-premutation Service at St Mary’s Hospital, Manchester My name is Dr Iris Trender-Gerhard, and I am a consultant neurologist...
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