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Apr 19, 2016
7 Days of Action
This week sees the launch of the 7 Days of Action Campaign, which aims to raise awareness of and bring about change for the people in...
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Apr 14, 2016
Welcome to our new Fundraising Officer!
Last year, Sophie Kashi joined us as our Communications Officer. More recently, she has taken on a full time role to oversee our...
36 views
Apr 14, 2016
Fragile X Syndrome Awareness Workshop & Drop In Clinic!
In partnership with the Autism One Stop Shop in Inverness, Sandra, our lovely Scotland based Support and Development Worker, will be...
89 views
Apr 11, 2016
Talking with your Children about Fragile X: Why, How, and When?
This article has been republished with permission from the National Fragile X Foundation. Visit fragilex.org for more information. The...
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Mar 17, 2016
Raising Fragile X Awareness in the Welsh Assembly
On March 16th 2016 we called on Members of the National Assembly for Wales to better recognise and understand the needs of individuals...
108 views
Mar 17, 2016
International Fragile X Alliance Launched!
The International Fragile X Alliance (IFXA), a global network of Fragile X parent support organizations, was launched on February 29,...
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Mar 15, 2016
Fragile X and Autism: Why getting the right diagnosis really matters.
The Fragile X Society team exhibited at the 2016 AKO Autism Expo on Saturday 12th March. In this blog, Becky (our CEO) gives an overview...
454 views
Dec 23, 2015
Logo Reading App: Dr Marcia Braden
What’s it for: Dr Marcia Braden (educational psychologist with expertise in autism and Fragile X Syndrome) has released a new app. The...
152 views
Dec 23, 2015
Interesting preliminary results in Fragile X Medication Trial
Comments by Dr Mark Hirst & Professor Jeremy Turk, summarised by Becky Hardiman Recent results have been released about a trial of a new...
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Dec 23, 2015
A Note From Craig: The New Chair of the Fragile X Society
As the new Chair of the Fragile X Society, I thought I would quickly introduce myself via a short blog post, which I hope you find both...
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