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Newborn bloodspot screening
An update from the Chair of our Board of Directors, Kirsten Johnson
Jan 3, 2023
199 views
Video Presentations from our Fragile X Society Conference 2022 in Birmingham
Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.
Oct 27, 2022
51 views
Kim's Marathon Challenge
Kim is running a virtual half marathon to raise funds and awareness for Fragile X
Sep 14, 2021
74 views
Understanding infants and toddlers with fragile X syndrome: New Research
Background If you look at what we know about fragile X, most of it comes from research on older children, adolescents, and adults. So we...
Jan 15, 2015
5,480 views
Results of the Roche Trial of RO4917523 for Fragile X Syndrome
As some of you may be aware, Roche have just released an outline of the findings from their recent clinical trials in fragile X. ...
Sep 19, 2014
198 views
Results of the Novartis AFQ056 Clinical Trial for Adults with Fragile X Syndrome
November 2013 - Results of the Trial The results from the Phase IIb trial of AFQ056 in adults with Fragile X Syndrome were released to...
Nov 1, 2013
68 views
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