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Aug 17, 2022
Five simple tips for hot weather
Laura has shared these great tips which helped her child cope with the recent hot weather.
49 views
Aug 4, 2022
Fragile X and FXTAS: my family's story
Emma has shared with us her family's story of Fragile X and FXTAS (Fragile X-Associated Tremor/Ataxia Syndrome) Emma tells us, "I had...
735 views
Aug 4, 2022
Hello from Northern Ireland!
Jan Wright, our contract worker in Northern Ireland, has shared this update on what's been happening in Northern Ireland Hello from...
119 views
Jul 13, 2022
Light up a landmark for Fragile X Awareness Day on 10 October!
Please help us raise awareness for International Fragile X Awareness Day on 10 October by asking councils to light up a landmark in blue!
506 views
Mar 24, 2022
Barriers to participating in clinical trials
What are they and how can they be addressed by researchers of medication trials for Fragile X Syndrome?
92 views
Oct 20, 2021
Hannah's 80km running challenge for Fragile X
Hannah shares her story of her running challenge during Fragile X Awareness month, in memory of her father, Bob
98 views
Sep 14, 2021
Kim's Marathon Challenge
Kim is running a virtual half marathon to raise funds and awareness for Fragile X
73 views
May 25, 2021
Dennis gets his vaccine
Jo shares how son, Dennis, who has Fragile X, got on with having his Covid-19 vaccination
659 views
Apr 27, 2021
Pedal Power: Theo's Cycling Adventures
Petra shares son Theo's cycling adventures during lockdown covering an amazing 3,278 miles!
171 views
Feb 24, 2021
Covid 19 vaccine prioritised for people with learning disabilities
All people on the Learning Disability Register to be prioritised for Covid-19 vaccine
178 views
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