Rare Disease Day: 28 February 2023
NEW: watch our animated video raising awareness of Fragile X and associated conditions, to mark Rare Disease Day 2023.
top of page
Search
Jan 5, 2023
Farewell from Mark Smith
Director, Mark Smith, says goodbye to the Fragile X Society Board, and shares what inspired him to get involved.
193 views
Nov 30, 2022
Calling all members in Northern Ireland!
Would you like to help shape support for Fragile X families in Northern Ireland?
28 views
Nov 3, 2022
Calling all members in Wales!
Would you like to network with other members and families in Wales at a support group? Let us know if you'd like to join our meetings.
46 views
Oct 27, 2022
Video Presentations from our Fragile X Society Conference 2022 in Birmingham
Videos of the talks from our Conference 2022 at Birmingham are available to view on our YouTube channel. Click below to watch.
46 views
Oct 11, 2022
Christmas Cards now in stock!
Our Christmas Cards have arrived! Available from our online shop - please order early!
139 views
Oct 10, 2022
International Fragile X Awareness Day 2022: 10 October
Today is International Fragile X Awareness Day. But what is life really like with Fragile X? Watch our special family stories to find out.
231 views
Oct 5, 2022
Twelve top tips for Christmas
Caroline Pringle, Families and Professionals Advisor (Child Enquiries), shares some strategies for coping with the festive season.
118 views
Sep 21, 2022
Frank and John's Tough Mudder
Frank and John undertook a gruelling challenge at the weekend in the form of the 15km Tough Mudder North West, in aid of Fragile X Society.
45 views
Aug 17, 2022
Our family trip to the NFXF Conference, San Diego
Katrina sent us this update and pictures from her family's summer trip to the National Fragile X Foundation (NFXF) conference in San Diego.
102 views
bottom of page