Efficacy and safety of cannabidiol-based hand gel (ZYN002) for young people with Fragile X Syndrome following a recent study.

An update from the Chair of our Board of Directors, Kirsten Johnson

What is the project? An exciting project which aims to develop a new system to help families address rigidity in their child’s routines...

It is only fairly recently that research has started focusing on people who have the Fragile X premutation, i.e. individuals who have a...

Challenging behaviours, such as self-injurious behaviour and aggression, are a significant concern for some people with Fragile X...

Effective communication forms an important part of a child’s daily life. For example, producing and understanding speech are criticalfor...

Introduction For a long time, it has been known that fragile X syndrome could be passed to future generations from people with smaller...

School-aged boys with fragile X syndrome (FXS), the leading inherited cause of learning disability, often display marked delays in the...

What are the early skills which help children to develop language? An important part of learning language, for typically developing...

We want you to tell us what it is like to be an adult with fragile X, and what your life is like. If you would like to take part, please...