top of page
Fundraising Stories
Read our blog below to discover some inspiring fundraising stories from our amazing supporters. We are so grateful for their support, and they might inspire you with some ideas too!



Glasgow Bakers
Steve Harris, the FX Chair, was invited by the Deacon at the Trades House of Glasgow to receive a cheque. The Bakers organized a charity...
Feb 191 min read
Eddie & Ciara Fundraising
Eddie and Ciara successfully finished the Winter Milton Keynes half marathon. Despite the terrible weather, Eddie completed the race with...
Dec 11, 20241 min read


Eddie's fundraiser for The Fragile X Society
We received a lovely story from Ciara and Eddie. They are both taking part in the Milton Keynes Winter Half Marathon to raise awareness...
Nov 12, 20242 min read
Stephens Fundraising for FXS
We would like to say a massive thank you to Stephen, Keith and Milo. Stephen who has Fragile X syndrome, decided he would love to raise...
Nov 6, 20241 min read


Michael Runs The Great North Run
Last month we received a lovely story from one of our members Michael, who was taking part in The Great North run, to raise awareness and...
Sep 26, 20241 min read


Shelagh's Fundraiser for The Fragile X Society
We would like to say a BIG thank you to Shelagh and her supporters who took part in the Aberdeen Kilt Walk on the 2nd June 2024. Shelagh...
Jun 19, 20241 min read


Gemma's Fundraiser for Fragile X
We would like to say a massive thank you to Gemma, Andy, their son and all of their friends who took part in the Sutton Coldfield fun run...
Jun 12, 20241 min read


Anna's fundraiser for The Fragile X Society
We would like to say a massive thank you to Anna, Pippa & Daisy. Girls this is such an amazing achievement, and we are all so proud of...
May 29, 20241 min read


Phil runs the London Marathon 2024
Phil Malsbury has secured a place in this year's 2024 London Marathon, and has chosen to raise funds for the Fragile X Society. Here, he...
Apr 16, 20241 min read


Rhys & Owen MMA Charity Event
A Tiagon MMA Club, held a local charity fight night event and chose to support the Fragile X Society as their main charity. Fragile X was...
Mar 28, 20241 min read


Isabel's Story
Having done the Great South Run once before, I was keen to do it again and this time raise some money for charity. Which charity was...
Dec 7, 20233 min read

Danielle & Isla's Fundraiser for Fragile X Society
Danielle and Isla are running the Garioch 5k. This is their story on why they have chosen the Fragile X Society to support. The Society...
Oct 19, 20231 min read


Frank and John's Tough Mudder
Frank and John undertook a gruelling challenge at the weekend in the form of the 15km Tough Mudder North West, in aid of Fragile X Society.
Sep 21, 20221 min read


Dasha runs the London Marathon
Dasha Gold has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.
Aug 31, 20221 min read


Jess runs the London Marathon
Jessica Bolton has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.
Aug 23, 20221 min read


Annie runs the Lisbon Marathon
On 9 October this year, Annie Whiteside will be running the Lisbon Marathon to raise funds and awareness for Fragile X Society.
Aug 4, 20221 min read

Luke and Jas's marathon week for Fragile X
Luke Atterbury and friend, Jas, have recently tackled not one, but two, challenges in aid of the Fragile X Society
May 26, 20221 min read


Jonathan and Darcy run the Oxford Town and Gown
Father and daughter team run 10k race in aid of Fragile X Society
May 19, 20221 min read


Boston Marathon
One of our Directors, John Quaye, is running the Boston Marathon on behalf of Fragile X Society on 18 April this year - his 14th marathon!
Feb 9, 20221 min read


Hannah's 80km running challenge for Fragile X
Hannah shares her story of her running challenge during Fragile X Awareness month, in memory of her father, Bob
Oct 20, 20212 min read


Kim's Marathon Challenge
Kim is running a virtual half marathon to raise funds and awareness for Fragile X
Sep 14, 20212 min read

Fighting for Fragile X: Pete's Boxing Match
Pete's boxing match in aid of The Fragile X Society
Aug 26, 20212 min read


Five Easy Ways to Support The Fragile X Society
Some simple suggestions as to how you can support The Fragile X Society
Jun 29, 20213 min read


Introducing Dean, our Virgin Money London Marathon 2021 runner
We're delighted to announce that Dean Whitmore will be running the marathon on our behalf. Here, he tells us what inspired him to run for us
Jun 23, 20212 min read


Virgin Money London Marathon 2021
Virgin Money London Marathon 2021 place for The Fragile X Society
Apr 21, 20212 min read


Melissa's March: 310,000 steps for Fragile X
Melissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X
Apr 19, 20212 min read


Jackie and Matt's 2 million step challenge
Jackie and son, Matt, share their story of their travels on foot to raise funds and awareness of Fragile X
Apr 17, 20212 min read


The Three Peaks - with a twist!
The Three Peaks - with a twist! Chris shares his remarkable fundraising (and fitness!) challenge.
Apr 12, 20212 min read


FUNdraising!
Please share your fundraising stories and photos with us!
Mar 25, 20211 min read


Darcy's 26 Hour 2.6 Tent Challenge
Darcy stayed in a tent in her garden for 26 hours, for her 2.6 Challenge
May 6, 20201 min read


Our Fantastic 2.6 Challenge Fundraisers!
This weekend saw the launch of the 2.6 Challenge, a campaign to save the UK's charities. Here are some challenges by our supporters.
Apr 30, 20206 min read


Connor's 2.6 Challenge Run and Ride
Connor Evans, age 12, decided to take part in the 2.6 challenge on Sunday 26th April 2020, to try and raise money for The Fragile X Society.
Apr 29, 20202 min read


Ava and Ella's hair donation
Tracy shares her story of daughters Ava and Ella's hair donation for the Little Princess Trust - and fundraising for The Fragile X Society
Mar 24, 20202 min read


Bridie's Fabulous Fashion Show!
In November 2019, Bridie organised a Fashion Show to raise funds, and awareness, for The Fragile X Society.
Jan 28, 20202 min read


Lisa's Xtraordinary Charity Race Night Raises over £800!
On Saturday 28th September 2019 I held a race night with a difference to raise money for Fragile X. Instead watching a horse race on a...
Oct 8, 20192 min read


Frozen: Iain's icy adventure
A supporter tells us what it was like walking across an East Asian lake under the watchful eyes of wolves! "On 3rd March this year I flew...
Jul 23, 20192 min read


Fantastic Facebook Fundraisers!
We have been absolutely blown away by our incredible supporters on Facebook who, this calendar year alone, have raised over £8,000! This...
Jul 23, 20191 min read


Coast to coast, east to west
This is the story of how my 47 year old brother-in-law Alec, who has Fragile X syndrome, completed a gruelling 400 mile cycle ride from...
Jul 19, 20194 min read


Wedding Gifts with an Impact
A wedding is a fantastic time to celebrate and recognise the people and the things most special to you, and the opportunity to have a day...
Jul 16, 20192 min read

Ian saves the day (Don’t try this at home)
Ian tells us why he ended up running a half marathon despite having done no training! “Anna, my wife, is a family member of the Fragile X...
Jun 28, 20192 min read


A Race to Raise Awareness
My name is Paula and I am 27 years old. I am a keen runner and I run with my local running club. I have been running for 2 years. My...
Apr 18, 20191 min read


Giving something back: Carmen's Story
"My name is Carmen, a fragile X carrier and mom to 3 gorgeous girls: Sofia who is 10 years old, Laura 7 and Beatriz 4. When Laura was 5...
Apr 1, 20172 min read


Ryan's Rowdy Ramblers Tackle Ben Nevis!
Written by Campbell Alexander Ryan, now 25, was diagnosed with Fragile X Syndrome in 1997, after 2 long years trailing around doctors and...
Jul 1, 20162 min read
bottom of page