Fundraising Stories

Read our blog below to discover some inspiring fundraising stories from our amazing supporters. We are so grateful for their support, and they might inspire you with some ideas too!

Dec 111 min read

Eddie & Ciara Fundraising

Eddie and Ciara successfully finished the Winter Milton Keynes half marathon. Despite the terrible weather, Eddie completed the race with...

Nov 122 min read

Eddie's fundraiser for The Fragile X Society

We received a lovely story from Ciara and Eddie. They are both taking part in the Milton Keynes Winter Half Marathon to raise awareness...

Nov 61 min read

Stephens Fundraising for FXS

We would like to say a massive thank you to Stephen, Keith and Milo. Stephen who has Fragile X syndrome, decided he would love to raise...

Sep 261 min read

Michael Runs The Great North Run

Last month we received a lovely story from one of our members Michael, who was taking part in The Great North run, to raise awareness and...

Jun 191 min read

Shelagh's Fundraiser for The Fragile X Society

We would like to say a BIG thank you to Shelagh and her supporters who took part in the Aberdeen Kilt Walk on the 2nd June 2024. Shelagh...

Jun 121 min read

Gemma's Fundraiser for Fragile X

We would like to say a massive thank you to Gemma, Andy, their son and all of their friends who took part in the Sutton Coldfield fun run...

May 291 min read

Anna's fundraiser for The Fragile X Society

We would like to say a massive thank you to Anna, Pippa & Daisy. Girls this is such an amazing achievement, and we are all so proud of...

Apr 161 min read

Phil runs the London Marathon 2024

Phil Malsbury has secured a place in this year's 2024 London Marathon, and has chosen to raise funds for the Fragile X Society. Here, he...

Mar 281 min read

Rhys & Owen MMA Charity Event

A Tiagon MMA Club, held a local charity fight night event and chose to support the Fragile X Society as their main charity. Fragile X was...

Dec 7, 20233 min read

Isabel's Story

Having done the Great South Run once before, I was keen to do it again and this time raise some money for charity. Which charity was...

Oct 19, 20231 min read

Danielle & Isla's Fundraiser for Fragile X Society

Danielle and Isla are running the Garioch 5k. This is their story on why they have chosen the Fragile X Society to support. The Society...

Sep 21, 20221 min read

Frank and John's Tough Mudder

Frank and John undertook a gruelling challenge at the weekend in the form of the 15km Tough Mudder North West, in aid of Fragile X Society.

Aug 31, 20221 min read

Dasha runs the London Marathon

Dasha Gold has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

Aug 23, 20221 min read

Jess runs the London Marathon

Jessica Bolton has secured a place in this year's London Marathon, and has chosen to raise funds for the Fragile X Society.

Aug 4, 20221 min read

Annie runs the Lisbon Marathon

On 9 October this year, Annie Whiteside will be running the Lisbon Marathon to raise funds and awareness for Fragile X Society.

May 26, 20221 min read

Luke and Jas's marathon week for Fragile X

Luke Atterbury and friend, Jas, have recently tackled not one, but two, challenges in aid of the Fragile X Society

May 19, 20221 min read

Jonathan and Darcy run the Oxford Town and Gown

Father and daughter team run 10k race in aid of Fragile X Society

Feb 9, 20221 min read

Boston Marathon

One of our Directors, John Quaye, is running the Boston Marathon on behalf of Fragile X Society on 18 April this year - his 14th marathon!

Oct 20, 20212 min read

Hannah's 80km running challenge for Fragile X

Hannah shares her story of her running challenge during Fragile X Awareness month, in memory of her father, Bob

Sep 14, 20212 min read

Kim's Marathon Challenge

Kim is running a virtual half marathon to raise funds and awareness for Fragile X

Aug 26, 20212 min read

Fighting for Fragile X: Pete's Boxing Match

Pete's boxing match in aid of The Fragile X Society

Jun 29, 20213 min read

Five Easy Ways to Support The Fragile X Society

Some simple suggestions as to how you can support The Fragile X Society

Jun 23, 20212 min read

Introducing Dean, our Virgin Money London Marathon 2021 runner

We're delighted to announce that Dean Whitmore will be running the marathon on our behalf. Here, he tells us what inspired him to run for us

Apr 21, 20212 min read

Virgin Money London Marathon 2021

Virgin Money London Marathon 2021 place for The Fragile X Society

Apr 19, 20212 min read

Melissa's March: 310,000 steps for Fragile X

Melissa shares son Hugo's diagnosis journey and her challenge of 10,000 steps each day of March 2021 to raise funds & awareness of Fragile X

Apr 17, 20212 min read

Jackie and Matt's 2 million step challenge

Jackie and son, Matt, share their story of their travels on foot to raise funds and awareness of Fragile X

Apr 12, 20212 min read

The Three Peaks - with a twist!

The Three Peaks - with a twist! Chris shares his remarkable fundraising (and fitness!) challenge.

Mar 25, 20211 min read

FUNdraising!

Please share your fundraising stories and photos with us!

May 6, 20201 min read

Darcy's 26 Hour 2.6 Tent Challenge

Darcy stayed in a tent in her garden for 26 hours, for her 2.6 Challenge

Apr 30, 20206 min read

Our Fantastic 2.6 Challenge Fundraisers!

This weekend saw the launch of the 2.6 Challenge, a campaign to save the UK's charities. Here are some challenges by our supporters.

Apr 29, 20202 min read

Connor's 2.6 Challenge Run and Ride

Connor Evans, age 12, decided to take part in the 2.6 challenge on Sunday 26th April 2020, to try and raise money for The Fragile X Society.

Mar 24, 20202 min read

Ava and Ella's hair donation

Tracy shares her story of daughters Ava and Ella's hair donation for the Little Princess Trust - and fundraising for The Fragile X Society

Jan 28, 20202 min read

Bridie's Fabulous Fashion Show!

In November 2019, Bridie organised a Fashion Show to raise funds, and awareness, for The Fragile X Society.

Oct 8, 20192 min read

Lisa's Xtraordinary Charity Race Night Raises over £800!

On Saturday 28th September 2019 I held a race night with a difference to raise money for Fragile X. Instead watching a horse race on a...

Jul 23, 20192 min read

Frozen: Iain's icy adventure

A supporter tells us what it was like walking across an East Asian lake under the watchful eyes of wolves! "On 3rd March this year I flew...

Jul 23, 20191 min read

Fantastic Facebook Fundraisers!

We have been absolutely blown away by our incredible supporters on Facebook who, this calendar year alone, have raised over £8,000! This...

Jul 19, 20194 min read

Coast to coast, east to west

This is the story of how my 47 year old brother-in-law Alec, who has Fragile X syndrome, completed a gruelling 400 mile cycle ride from...

Jul 16, 20192 min read

Wedding Gifts with an Impact

A wedding is a fantastic time to celebrate and recognise the people and the things most special to you, and the opportunity to have a day...

Jun 28, 20192 min read

Ian saves the day (Don’t try this at home)

Ian tells us why he ended up running a half marathon despite having done no training! “Anna, my wife, is a family member of the Fragile X...

Apr 18, 20191 min read

A Race to Raise Awareness

My name is Paula and I am 27 years old. I am a keen runner and I run with my local running club. I have been running for 2 years. My...

Apr 1, 20172 min read

Giving something back: Carmen's Story

"My name is Carmen, a fragile X carrier and mom to 3 gorgeous girls: Sofia who is 10 years old, Laura 7 and Beatriz 4. When Laura was 5...

Jul 1, 20162 min read

Ryan's Rowdy Ramblers Tackle Ben Nevis!

Written by Campbell Alexander Ryan, now 25, was diagnosed with Fragile X Syndrome in 1997, after 2 long years trailing around doctors and...

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