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Our News

We regularly post on our news page to keep you updated with the latest developments at the Fragile X Society. Find out about new fundraisers and team updates, as well as details on extra ways to support us by getting involved in awareness days and competitions.

28th February 2025 - Rare Disease Day

28th February 2025 - Rare Disease Day

Increasing awareness and driving change for the 300 million individuals globally affected by a rare disease, along with their families...

Glasgow Bakers

Glasgow Bakers

Steve Harris, the FX Chair, was invited by the Deacon at the Trades House of Glasgow to receive a cheque. The Bakers organized a charity...

FX Ambassador - Olia Hercules

FX Ambassador - Olia Hercules

We are delighted to share with you the news that Olia Hercules has agreed to become an Ambassador for the Fragile X Society. Olia is a...

Touch FX

Touch FX

Patrick Wild Centre are looking for volunteers with full mutation fragile X syndrome (aged 3-45) to join their study that aims to better...

Gemma's Fundraiser for Fragile X

Gemma's Fundraiser for Fragile X

We would like to say a massive thank you to Gemma, Andy, their son and all of their friends who took part in the Sutton Coldfield fun run...

Birmingham Conference 2024

Birmingham Conference 2024

We were delighted to see and welcome so many of you to our Fragile X Society Conference held at the Priory Rooms Conference in Birmingham...

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