TouchFX study - Touch sensitivity in fragile X syndrome
Researchers from the Patrick Wild Centre are currently looking for volunteers to take part in a research study that aims to better understand touch sensitivity in individuals who have fragile X syndrome. They hope that this study will help to develop an objective measure of tactile impairments in order to aid the development of appropriate treatments.
Who can take part?
They are currently looking for volunteers (3-45 years old) with full mutation fragile X syndrome as well as a comparison group of people without a neurodevelopmental condition.
What does the research involve?
The study involves having an EEG whilst holding a device that will deliver tactile stimulation to the fingertips. They will also measure your heart rate activity and blood pressure. You do not have to be able to do all of these to take part – any information they can gather is helpful.
Where can I get more information?
If you are at all interested in taking part, or even just want to find out more about what they are doing then please get in touch.
You can contact the researchers directly by email or telephone if you have any questions: Damien Wright (damien.wright@ed.ac.uk; 0131 537 6431). Or you can sign up to a study slot here: TouchFX booking page
Research team – Dr Andy Stanfield, Dr Leena Williams and Dr Damien Wright (CARID, Patrick Wild Centre, University of Edinburgh)