Snippets of Advice

Since joining the Fragile X Society as a Families and Professional Advisor, I have found that we are regularly contacted with common issues and queries affecting the Fragile X community that can be shared more openly on the website. I want to take this opportunity to deal with real issues in a practical and everyday manner and offer some useful snippets of advice.

We will also be featuring some guest posts from other experts in the field.

Jun 262 min read

Preparing for the next academic year...

As we have now entered the summer term, thoughts for many will be on preparing for the new academic year. For some children, things may...

Jun 21, 20233 min read

The New School Year -Getting Ready for the Autumn Term

Before we know it, the school summer holidays will be here, and it will be another change of routine for your child. It will then be the...

Mar 2, 20232 min read

Sensory issues and strategies to help: Week 5 (other factors, and bringing it all together)

In week 5 of her blog series on sensory issues, Caroline (Families & Professionals Advisor, child enquiries) brings it all together.

Mar 2, 20232 min read

Sensory issues and strategies to help: Week 4 (balance and body awareness)

In week 4 of her series on sensory issues, Caroline (Families & Professionals Advisor, child enquiries) covers balance and body awareness.

Mar 2, 20232 min read

Sensory issues and strategies to help: Week 3 (taste and smell)

In week 3 of her blog series on sensory issues, Caroline (Families and Professionals Advisor for child enquiries) covers taste and smell.

Feb 21, 20232 min read

Sensory issues and strategies to help: Week 2 (hearing/sound and touch)

In week 2 of her blog series on sensory issues, Caroline covers hearing/sound and touch, with strategies to help.

Feb 15, 20233 min read

Sensory issues and strategies to help: Week 1 (visual)

The first instalment in our new blog series looks at visual (sight) issues and strategies to help.

Nov 3, 20222 min read

Seasonal checklist for adults

Jane Oliver has some ideas to help you manage the festive season, & a checklist of some common triggers of 'challenging behaviour' in adults

Oct 26, 20221 min read

Friendship Friday and Anti-Bullying Week 2022

Anti-Bullying Week is coordinated in England & Wales by the Anti-Bullying Alliance. It takes place 14 -18 Nov 2022 & its theme is Reach Out.

Oct 5, 20224 min read

Twelve top tips for Christmas

Caroline Pringle, Families and Professionals Advisor (Child Enquiries), shares some strategies for coping with the festive season.

Aug 25, 20222 min read

Anti-Bullying Week: 14 - 18 November 2022

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) shares some information about this year's Anti-Bullying Week.

Jul 7, 20221 min read

Changes to the benefits system in Scotland

Information for our families in Scotland from our Families and Professionals Advisors

Jun 30, 20224 min read

Eating and mealtimes

Caroline Pringle, Families and Professionals Advisor for Child Enquiries, shares some strategies for eating and mealtimes with your child.

Jun 16, 20221 min read

Online safety

Caroline Pringle, Families and Professionals Advisor for Child Enquiries, shares some tips for keeping your children safe online.

May 5, 20223 min read

Getting ready for the new school year

Caroline Pringle, our Families and Professionals Advisor for Child Enquiries, shares some tips for the new school year

Mar 2, 20224 min read

Using Visual Aids

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) shares top tips on using visual aids to support your child.

Jan 13, 20221 min read

Additional Learning Needs Framework for Wales

Caroline Pringle, our Families and Professionals Advisor for Child Enquiries, shares an update on the Welsh education system

Nov 2, 20212 min read

Adults going back to services

Jane shares some tips for adults returning to services as Covid restrictions ease

Jul 13, 20212 min read

The end of term and transition to a new school or classroom

Caroline shares some tips for the transition to a new school or classroom in September.

Mar 10, 20213 min read

Your child's sleep

Some strategies for supporting your child's sleep from Caroline Pringle, in the latest edition of her 'Snippets of Advice' blog series

Feb 23, 20212 min read

Supporting siblings of children with Fragile X

Follow-up to our online workshop for parents, and additional resources.

Feb 23, 20213 min read

Spotlight on young siblings

Welcome to our new 'special edition' series of blog articles focusing on siblings. Here, Clare Kassa (CEO of Sibs) offers tips for parents.

Feb 17, 20215 min read

Going Back to school and How to Support Your Child

NEW: Download Caroline's presentation and video on 'Returning Safely to School' here.

Jan 13, 20211 min read

Child Disability Payment pilot scheme areas in Scotland

In her statement to Parliament in November 2020, Shirley-Anne Somerville MSP, Cabinet Secretary for Social Security and Older People, set...

Jan 13, 20211 min read

Covid-19 Update

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) There is a wealth of information to support families during this...

Jan 12, 20212 min read

Another lockdown with your children at home

Caroline Pringle, Families and Professionals Advisor (Child Enquiries) Well, we are in another lockdown; some of your children may be...

Sep 3, 20201 min read

Face Coverings in Schools

Links to guidance throughout the UK on face coverings in schools

Aug 6, 20201 min read

Re-opening of adult day services and respite in Scotland

Jul 23, 20201 min read

An open letter from Vicky Ford MP and Helen Whately MP

Open letter of 21 July 2020 from Vicky Ford MP and Helen Whately MP

Jun 23, 20201 min read

Wearing Masks

Mask wearing in public is being more widely encouraged. Whilst some people may like wearing a mask, others may find it more tricky.

May 20, 20201 min read

Going Back to School

Going back to school is something which is likely to be on many families' minds at the moment. Here are links to some helpful resources.

May 7, 20201 min read

Education, Health and Care Plans

Entitlement for children and young people with Special Educational Needs during Covid 19

Apr 8, 20204 min read

Supporting Children with Fragile X Syndrome during Lockdown: Some Tips

Supporting children with Fragile X Syndrome during lockdown: some tips

Apr 2, 20201 min read

Update on benefits: coronavirus

Jane Oliver, Senior Families and Professionals Advisor (Adult Enquiries), highlights some recent changes to benefits

Apr 1, 20203 min read

We're all at home - help!

Some tips for staying at home from Jane Oliver, Senior Families and Professionals Advisor at The Fragile X Society

Jan 23, 20202 min read

Using Social Stories from Adolescence into Adulthood (Part 2)

This article follows on from our first ‘snippets of advice’ information using social stories for early years to adolescence (click here...

Sep 24, 20194 min read

Using Social Stories from Early Years to Adulthood (Part 1)

Social stories are used to give individuals clear information about people, events and situations and to introduce a new experience.

Sep 17, 20192 min read

What Teachers Should Know About Fragile X Syndrome

Students with Fragile X are prone to hyperarousal: here are some tips to minimise hyperarousal and anxiety & maximise focus and cooperation.

May 14, 20192 min read

Puberty & Growing Up

Using a time line to explain growing up Published 14 May 2019, updated 8 July 2020 Puberty has been on the radar recently on the advice...

Mar 29, 20192 min read

Sensory 'Frontloading': What is it and how can it help?

On talking to parents on the advice line one common issue is anxiety levels when transitioning from one activity to the next, e.g. going...

Aug 30, 201812 min read

Ask Jil: Answering your questions about Females with Fragile X

Jil Frey, MSW, LCSW is an American clinical social worker working with individuals of all ages with a variety of social, emotional, and...

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